Patient groups call on all federal Parties: State your health commitments for the 2019 federal election
Patient groups are asking why Canada’s political Parties are not doing a better job at articulating a comprehensive approach to health care in the run up to the federal election. The federal Health Minister expressed support for the Hoskins Report on national pharmacare issued last week, however, while one piece of the puzzle, this report is not a comprehensive health care strategy. “Canadians are generally proud of our universal health care system, but more needs to be done. Shockingly, Save Your Skin Foundation has seen people forced to sell everything to get proper cancer care in Canada. This is unacceptable and must be addressed by our federal government moving forward,” stated Louise Binder, Health Policy Consultant for Save Your Skin Foundation.
May is Melanoma Awareness Month
This year, for Melanoma Month, Save Your Skin Foundation will bring awareness to the following issues:
• Skin cancer rates in Canada continue to rise, including melanoma, ocular melanoma, and non-melanoma skin cancers.
• Now is the time for increased preventative efforts and methods of early detection, particularly in the form of public education, public policy and built environments.
• Too many gaps still exist in patient care, particularly around lack of resources for psychological support, lack of treatment for pre-stage IV patients and unequal access to life-saving treatments.
Save Your Skin Foundation Applauds Health Canada’s Notice of Compliance for Libtayo™ for the Treatment of Advanced Cutaneous Squamous Cell Carcinoma (CSCC)
CSCC is the second most common form of skin cancer accounting for approximately one- fifth of all skin cancer cases in Canada. When CSCC invades deeper layers of the skin or adjacent tissues, it is categorized as locally advanced. Once it spreads to other distant parts of the body, it is considered metastatic. Prior to today’s announcement, in 2018 Libtayo™ received FDA approval under Priority Review and was granted Breakthrough Therapy Designation status for advanced CSCC which was created to expedite the development and review of drugs that have the potential for substantial improvement in the treatment of serious or life-threatening conditions.
Launch of OCUMEL CANADA Offers New Hope for Canadians Diagnosed with Rare Ocular Melanoma
Save Your Skin Foundation, a Canadian, patient-led, notfor-profit organization, is launching Ocumel Canada to increase awareness, advance treatment options, and improve patient outcomes for Canadians touched by Ocular Melanoma, a rare but aggressive form of melanoma. Save Your Skin Foundation (SYSF) has joined forces with ocular melanoma (OM) survivor and advocate Nigel Deacon, to create Ocumel Canada and improve OM patient care across Canada.
Save Your Skin Foundation Applauds Health Canada Approval of First Adjuvant Treatment for Melanoma to Prevent Relapse Following Surgery
Health Canada approves Tafinlar® (dabrafenib) plus Mekinist® (trametinib) for the Adjuvant Treatment of Melanoma Patients (with BRAF V600 mutation).
“Canadians with Stage III melanoma are in urgent need of access to new adjuvant therapeutic options to prevent recurrence – it’s unfair to expect them to just watch and wait for it to happen,” says Kathy Barnard, Founder of Save Your Skin Foundation. “We applaud Health Canada’s approval of this combination treatment for patients in this situation.”
May is Melanoma Awareness Month – As Skin Cancer Rates Continue to Rise Across Canada, Save Your Skin Foundation is Raising Awareness on the Need for Prevention, Early Detection and Patient Support.
This year, for Melanoma Month, Save Your Skin Foundation, a Canadian, patient-led, not-for-profit organization operating across Canada and internationally, is dedicating this month to the following initiatives: Raising public awareness of skin cancer, the need for preventative measures, and the importance of early detection. Supporting patients by offering assistance, providing helpful resources, and fighting for equal, timely access to treatment. Helping the emerging population of melanoma survivors to transition to life after cancer.
Save Your Skin Foundation Applauds Health Canada’s Approval of BAVENCIO™ (avelumab for injection) for the treatment of metastatic Merkel cell carcinoma (MCC)
“Canadians living with metastatic MCC are in urgent need of access to new therapeutic options to treat their aggressive disease – they simply don’t have the luxury of time,” says Kathy Barnard, Founder of Save Your Skin Foundation. “We applaud Health Canada’s approval of BAVENCIO, which provides new hope for patients and their loved ones.”
Canadian Patient Groups Call on Federal Health Minister to Halt the Process Examining Proposed Amendments to the Patented Medicine Regulations Pending Constructive Consultations
“Access, appropriate use and affordability are the pillars of our healthcare goals in Canada and we encourage comprehensive dialogue with patient organizations, industry and government to identify strategies and methods to maintain this balance,” said Louise Binder of Save Your Skin Foundation. “We can’t jeopardize our current standard of care, especially in this era of unprecedented medical innovation and breakthrough therapies.”
CONECTed Welcomes the Ontario PC Party’s Commitment to Improving Healthcare for Cancer Patients and Calls on Other Parties to Match These Platform Statements
“We recognize the importance of a sustainable, affordable health care system and also the importance of access to badly needed cancer treatments for people who would otherwise have terrible quality of life and a much shorter lifespan,” says Kathy Barnard, cancer survivor, Founder of Save Your Skin Foundation, and CONECTed steering committee member. “While innovative drugs are high priced, the provinces can negotiate risk sharing arrangements with the manufacturers that will save money in the drug budget…”
Drug Pricing Policy Summit 2017: Measuring Progress and Making our Mark
Health System Transformation ~ Patients Share Vision and Engage Decision-Makers
November 15 – 16, 2017 from 9:00 AM – 5:00 PM
CONECTed Shining a Spotlight on the Lack of Transparency When it Comes to Access to Cancer Treatments
With federal, provincial, and territorial health ministers meeting in Edmonton later this week, a Canadian cancer patient network is expressing its concern about the lack of transparency in the pan-Canadian review process that formalizes recommendations on the funding of cancer therapies on public drug plans.
Global Melanoma Research Network, Save Your Skin Foundation and Pulse Infoframe Collaborate to Augment Collection of Patient Relevant Melanoma Data
Partnership to Result in Real Time Data to Inform Policy Makers, Advance Research and Benefit Those Living with Melanoma
“The ability to tap into existing innovative and broadly deployed melanoma registries is another example of how Save Your Skin Foundation is advocating for patients,” said Kathy Barnard, Save Your Skin Foundation Founder and President. “As a melanoma survivor, I know first-hand the challenges that all involved face. The Save Your Skin Foundation is committed to serving this field, in all facets, and ultimately to eliminating melanoma. Our relationship with the Global Melanoma Research Network and Pulse Infoframe supports and advances these commitments.”
#CancerChanged Campaign Launched to Celebrate National Cancer Survivors Day on Sunday, June 4th 2017
#CancerChanged is a series of documentary-style photo essays that bring to life the stories of Canadian men and women living with advanced cancers. The series aims to highlight hope and survivorship through the lens of award-winning Canadian photojournalists. The #CancerChanged campaign gives an authentic glimpse into the lives of people living longer with advanced cancers to foster hope, understanding and peer-to-peer support. It aims to drive awareness that cancer survival is changing from the time of diagnosis to the outcome of a person’s life.
Federal Health Minister Dr. Jane Philpott’s announcement today at the Economic Club of Canada on “improving affordability, accessibility and appropriate use of drugs in Canada,” may well have a profound impact on drug prices in the country.
The many patient organizations participating in the Drug Pricing Policy Working Groups encourage relevant stakeholders to reconsider the way we measure the value of potential lifesaving drugs, enhance drug access in Canada and address high priced pharmaceuticals.
Save Your Skin Foundation Leads Patient Advocacy Initiative To Push For Equal, Timely Access To Innovative New Cancer Treatments
Thanks to the emergence of innovative new treatments, the last two years have marked a dramatic shift in how we look at cancer. These new treatments mean that cancer patients are not only seeing increased survival rates, but also experiencing a better quality of life while in treatment than was ever possible with standard therapies. The challenge with new treatments is ensuring that they are made accessible to patients who need them. The Save Your Skin Foundation’s advocacy initiatives are pushing for a more transparent, efficient, and agile approach to drug approval and provincial funding decisions.
Patient advocacy experts gather to start a conversation on cancer immunotherapy in Canada
Inaugural patient summit brings together experts across oncology to collaborate on patient access to innovative cancer treatments and foster collaboration among patient groups and the medical community to improve patient outcomes
TORONTO – March 27, 2017
JOINT ANNOUNCEMENT Major Step Forward in Accessing New Life-Extending Medication for Advanced Metastatic Lung, Melanoma and Kidney Cancer Patients
pCPA negotiations concluded. Provinces and Territories encouraged to quickly list.
TORONTO – February 13, 2017
Important New Cancer Treatments Approved By Health Canada Marred By Major Provincial Reality Disconnect For Patients
Patient access to innovative new cancer treatments seriously limited by provincial funding recommendations across Canada
TORONTO – November 22, 2016
Health Canada Approves First-ever Combination of Two Immuno-Oncology Agents for Metastatic Melanoma
Health Canada approves the OPDIVO® + YERVOY® regimen for previously untreated patients with unresectable or metastatic melanoma
ESMO (European Society for Medical Oncology) Breaks Records for Attendance and the Quality of Science Presented
Save Your Skin Foundation attends ESMO 2016 in Copenhagen, Denmark, taking part in the annual congress impacting the practice of oncology across the globe
Canadians with advanced skin cancer share their disease journey in empowering photo series: Melanoma Through My Lens
Campaign aims to raise awareness about different forms of the life-threatening skin cancer and its impact on patients and their families
TORONTO – August 17, 2016
Save Your Skin Foundation Recognizes National Cancer Survivors Day (Sunday, June 5th) with Greater Hope for Advanced Melanoma Survival
On the tenth anniversary of the Foundation, Cancer Survivors Day also marks a survivorship milestone for Save Your Skin Founder, Kathleen Barnard
Save Your Skin Foundation is Creating a Healthier and More Sun Safe Canada
May is Melanoma Awareness Month and the Canadian Foundation will roll out initiatives across the country to build greater awareness of skin cancer
Save Your Skin Foundation Wants You To Know It’s #NotJustSkinCancer
Tweets Inspired by Real Online Conversations Shed Light on Need for Greater Skin Cancer Awareness and Education
Together, #WeCanICan create awareness of #WorldCancerDay on February 4th!
Save Your Skin Foundation Participates in World Cancer Day #WeCanICan campaign, an Initiative of the Union for International Cancer Control (UICC)