Health Policy Resources

Click on the links below to learn more about the work we do in Canadian Health Policy and patient advocacy. By representing the patient voice, we encourage improvement in cancer treatment access and value-based health care across the country.

Moncton Pre-Election Town Hall: Major Health Concerns for New Brunswickers

July 31, 2018, at the New Brunswick Community College.

 

This town hall included an impressive slate of participants including keynote speaker André Picard, author, health reporter and columnist for The Globe and Mail. Three people with lived experience – advocates for cancer, mental health and arthritis – described the challenges of navigating the complex health care system, how they had to research and find their own treatment options and at times travel out of province to receive the care they needed.  Additionally, a panel of experts focused on the need for policy and system improvements: New Brunswick’s Health Council (NBHC), CEO Stéphane Robichaud, Louise Binder, Health Policy Consultant SYSF, and Linda Wilhelm, Canadian Arthritis Patient Alliance.  New Brunswick Minister of Health, the Honorable Benoît Bourque and Green Party Leader, David Coon also shared their views about health care.

 

Click here to watch the recording of the town hall that we have made available on YouTube, and feel free to share this link with your network.

 

Click here to read the event report: Moncton Pre-Election Town Hall on Major Health Concerns – Key Messages  August 15, 2018

Toronto Pre-Election Town Hall: Major Health Concerns for Ontarians

March 28, 2018, at the CBC on Front Street.

 

André Picard, Health Columnist for the Globe and Mail, opened the evening and set the tone for the session, sharing his expert knowledge acquired over more than 30 years on our health care system. We heard from a variety of people with lived experience on their very personal health issues and corresponding challenges accessing timely and affordable life-saving treatment. We also heard from health and mental health policy experts for the need for policy and system improvements and from politicians who expressed a deep and personal understanding of where our health care system is failing and a sincere desire to improve it. We also had a very engaged audience who articulately voiced their individual concerns and asked intelligent and insightful questions of our expert panel and politicians.

 

Click here to watch the recording of the town hall that we have made available on YouTube, and feel free to share this link with your network.

 

Click here to read the event report: Ontario Pre-Election Town Halls on Major Health Concerns – Key Messages  April 26, 2018

Drug Pricing Policy Summit, Toronto, Ontario

 

In November 2016, the first annual Drug Pricing Policy Summit was held in Toronto, Ontario.  Click here to read the Event Report: Drug Pricing Policy in Canada: Mobilizing Patients to Action

In November 2017 was the second DPPS – varied patient groups joined the Canadian Cancer Survivor Network, Schizophrenia Society of Ontario, and Save Your Skin Foundation to discuss:  Drug Pricing Policy in Canada: Measuring Progress and Making Our Mark.

For background information on 2016 and 2017 Summits please click here.

 

November 13-14, 2018, Toronto, Ontario:

Join Save Your Skin Foundation, the Schizophrenia Society of Ontario, the Canadian Cancer Survivor Network and other patient groups for a third annual Drug Pricing Policy Summit: Patients Redefining Health Care. The 3rd annual Summit builds on the 2016 and 2017 Summits which provided an unprecedented opportunity for patients, caregivers and patient representatives from diverse disease and disability groups to come together to discuss a shared vision for health care in Canada.

The 2018 Summit will dive deeper into Value-Based Health Care (VBHC), introduced to participants at the 2017 Summit, within the context of drug treatment and will build a work plan for VBHC in Canada, led by patients, caregivers and their allies. Please see the backgrounder attached for more information. 

Click HERE to Register!

INNOVATIVE DRUGS: A BUREAUCRATIC OBSTACLE COURSE

Prepared by Mathieu Bédard, Economist at the MEI, April 2018

 

Innovative drugs help people enjoy longer, healthier, more productive lives. They also allow our health care systems to save money.
However, the reimbursement of new drugs by Canada’s public plans can face considerable delays due to a very burdensome regulatory process. Far from resolving this problem, a new reform will duplicate certain stages of this process and possibly lengthen it.

Click here to read the full Viewpoint – Innovative Drugs: A Bureaucratic Obstacle Course

Et en francais: Le Point – La course à obstacles des nouveaux médicaments

Improving access to new cancer treatments in Canada

 

Many Canadians are surprised to learn that a drug’s approval for sale by Health Canada doesn’t equate to access to these often lifesaving therapies. For cancer patients, time is valuable and access to effective therapies is critical. While advances in screening, detection and treatment have improved outcomes, an estimated 80,800 Canadians are expected to die of cancer in 2017. Health Canada has implemented mechanisms to improve timely access to innovative and potentially curative therapies for those with life-threatening conditions, including cancer. Public funding of these treatments, however, has not kept pace with their approval. Patients are suffering the consequences. Drugs may be available for doctors to prescribe, but unless they are reimbursed by the government, new cancer treatments are inaccessible to many patients.

Click here to read the full white paper published by Lymphoma Canada and 12 other signatories (including Save Your Skin Foundation): Improving Access to Innovative Cancer Therapies in Canada

Health Canada Submission

 

Our health care system is complex with many key decision makers at either federal, national or provincial levels that are responsible for the health care services Canadians receive. Canada, like many countries, is facing escalating healthcare costs as payers struggle to reconcile drug budgets with patient access to promising new health technologies. Health Canada holds different responsibilities influencing the landscape of our health care system, including drug safety, quality and effectiveness, and an important role with respect to drug pricing.

 

The Patented Medicine Prices Review Board (PMPRB) undertook major consultations regarding possible reform of its Compendium of Policies, Guidelines and Procedures and during this 1st phase of the consultation initiative, asked for input on how to rethink the Guidelines in order to improve performance in ensuring that pharmaceutical patent holders do not charge excessive prices. We, as patient organizations, recognize the regulations overseeing drug pricing need to be re-evaluated, especially given the changes in our ecosystems since the inception of these regulations.

 

We are grateful to all those involved in seeking the input of groups like ours and other stakeholders on protecting Canadians from excessive drug prices.  Save Your Skin Foundation participated with 16 other concerned patient groups.  Click here to read and download: Recommendations on Proposed Amendments to the Patented Medicines Regulations, June 28, 2017  

Government Relations

 

Save Your Skin Foundation has developed an established government relations approach that includes open communication and consultation between policy makers and leaders within the Foundation. We contribute to policy discussions and work towards consistent and effective implementation of procedures and protocols that put the patient first.  Click here to read about our January – June 2017 schedule of meetings.

together we can make a difference

Making awareness and education available is crucial. Since 2006, the Foundation has worked to raise awareness of melanoma and non-melanoma skin cancers focusing on education, prevention and the need for improved patient care.

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