Additional Resources & Support Groups

You are not alone in dealing with skin cancer

Listed here are a few sources of information and support you might find useful. These groups are not connected to Save Your Skin Foundation. We are providing the links as useful sources of information but do not monitor content for accuracy and quality.

Additional Resources

 

Canadian Skin Patient Alliance

Save Your Skin Foundation is an affiliate member of Canadian Skin Patient Alliance (CSPA). CSPA serves as an umbrella organization for Canadian not-for-profit patient groups and organizations that deal with skin conditions and diseases. By working together, we can strongly advocate for the needs of skin patients across the country and provide comprehensive education and support.  Skin patients and their families benefit by becoming part of a bigger community and gaining access to information about treatment, care and research in skin disease.

 

Canadian Cancer Society 
The major national organization in Canada for all types of cancer information and support. They also have provincial organizations.

 

NEW! Click here to read our report:  2018 Distillation of Melanoma Statistics, September 2018

 

June 2017:  A Distillation of Melanoma Statistics, from the Canadian Cancer Society Documents Canadian Cancer Statistics 2017 and 2016.

To read the full reports on Canadian Cancer Statistics, produced by Canadian Cancer Society, Statistics Canada, Public Health Agency of Canada, Provincial/Territorial Cancer Registries, click here for the 2017 report and here for the 2016 report.

 

The Alberta Society of Melanoma

The Alberta Society of Melanoma endeavors to provide information, resources, and support for people living with Melanoma.  We also strive to promote and foster research, advocacy, and awareness to this often misunderstood form of cancer.

 

Canadian Skin Cancer Foundation

We are a member of a network of organizations dedicated to improving accessibility to treatments for patients diagnosed with skin cancer. 

 

Melanoma Network of Canada
The Melanoma Network of Canada is a national, patient-led charity whose mission is to provide melanoma patients and their caregivers with current and accurate information and services in the fight against melanoma.

 

Cancer.Net
Cancer.Net is one of the most up-to-date and trusted resources for cancer information. Cancer.Net provides timely, oncologist-approved information to people living with cancer and those who care for and care about them. All the information and content on Cancer.Net was developed and approved by the cancer doctors who are members of ASCO, to help patients and families make informed healthcare decisions.

 

Shade Foundation of America 
The Shade Foundation of America describes itself as “The Children’s Skin Cancer Education & Prevention Foundation.” Based in Washington, DC, is the only national U.S. children’s foundation devoted to skin cancer education and prevention. The site includes activities and resources to educate kids about protecting their skin.

 

National Cancer Institute (Skin Cancer) 
The National Cancer Institute (NCI) in the U.S. is part of their National Institutes of Health (NIH). The NCI coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. The link above is to their homepage about skin cancers.

 

The Skin Cancer Foundation 
Based in New York City, The Skin Cancer Foundation was founded in 1979 and works to educate the public and the medical profession about skin cancer, its prevention by means of sun protection, the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating skin cancer.

 

Aim at Melanoma 
AIM at Melanoma is globally engaged and locally invested in advancing the battle against melanoma through innovative research, legislative reform, education, and patient and caregiver support.

 

Melanoma Research Alliance

The mission of the Melanoma Research Alliance (MRA) is to end suffering and death due to melanoma by collaborating with all stakeholders to accelerate powerful research, advance cures for all patients, and prevent more melanomas.

 

Melanoma Research Foundation 
Committed to the support of medical research in finding effective treatments and eventually a cure for melanoma, the MRF also educates patients, caregivers and physicians about the prevention, diagnosis and treatment of melanoma.

 

Melanoma International Foundation 
Established in 2003, the Melanoma International Foundation (MIF) is a non-profit organization created to provide the scientifically sound guidance and support.

Additional Support Groups

 

Cancer Hope Network  
Founded as CHEMOcare in 1981 and based in New Jersey, Cancer Hope Network is a not-for-profit organization that provides free and confidential one-on-one support to cancer patients and/or their family members. They do this by matching patients and family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience.

 

Cancer Support Community 
Calling itself “A global network of education and hope, the Cancer Support Community is based in Washington, DC, and runs various programs and activities to achieve its mission of ensuring “that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.”

 

CancerCare 
One of the older groups for cancer patients, CancerCare was founded in 1944 and is based in New York. It offers free, professional support services including counseling and support groups over the phone, online and in-person, educational workshops, publications and financial and co-payment assistance. All services are provided by oncology social workers and world-leading cancer experts.

 

Faces of Skin Cancer 
Faces of Skin Cancer gives people affected by advanced skin cancer a place to share their stories and help others understand what it really means to live with this disease. It includes video, audio and written stories that highlight different emotional and physical aspects of advanced skin cancer. Visitors can show support by sharing the stories with others and submitting their own stories.

 

Melanoma Patients Australia 
Melanoma Patients Australia is the only patient driven non profit organisation that offers a national network of support and information to patients, their families, carers, and friends, about melanoma prevention, diagnosis, management and treatment.

 

Melanoma Brasil 
Melanoma Brazil is made up of volunteers who are willing to contribute their time and expertise in the dissemination and awareness of skin cancer through various campaigns, to provide information and support for everyone.
Contact: Rebecca Montanheiro – Melanomabrasil@gmail.com

 

Melanoma Uruguay/LatinoAmerica 
The Association Melanoma Uruguay/Latin America is a support group for patients diagnosed with melanoma. It was born in February 2015 from the collaboration of “Aim at Melanoma,” which for more than a decade have helped people diagnosed and fighting melanoma.
Contact America Latina: Claudia Piazza Cidonio – claudia.cidonio@aimatmelanoma.org

 

Melanoma UK 
Melanoma UK is a patient support and advocacy group, dedicated to helping melanoma patients during all stages and fundraising to provide melanoma nurses and research.
Contact: Gill Nuttall – Gillian.nuttall@melanoma.org.uk

 

Melanoma Action & Support Scotland (MASScot)
Melanoma Action and Support Scotland (MASScot) offers support to patients with melanoma and non-melanoma skin cancer and their carers.
Contact: Leigh’s – leigh@masscot.org.uk

 

Melanom Deutschland 
Melanoma Germany is a nonprofit organization for those looking for more information and assistance about melanoma.
Contact: Madison Garrett – madison@aimatmelanoma.org

 

Les BisolaireS

Les BisolaireS deals with solar prevention and is aimed at those who wish to protect themselves effectively from the sun, and avoid sunburn, sunstroke and any consequent cancer of the skin (carcinoma and melanoma). The aim of this site is to collate the information that a patient needs to care for a scar, and also to display a range of information about sun protection including details of sunscreens adapted to skin type, anti-UV (or not) clothing, UV protection sunglasses which meet European standards, sun hats, hair care for sunny conditions.

 

Melanome France 
The aim of Melanome France is a  better understanding of melanoma, and to make treatments available to help patients in France.
Contact: Gilly Spurrier – Gilliosa@melanomefrance.com

 

Melanoma Italia 
Melanoma Italia provides up to date information about the disease and support to patients.
Contacts: Chiara Puri Purini – Chiara.puripurini@melanomaitalia.org or Claudia Cidonio: claudia.cidonio@aimatmelanoma.org

 

Portuguese Melanoma Intergroup 
The Portuguese Melanoma Intergroup (IPM) is a medical society, non-profit made up of professionals from different disciplines interested in the study, diagnosis and treatment of melanoma.
Contact: Maria Jose Passos – Passos.m@gmail.com

 

Melanoma España 
Melanoma España is a new Facebook Page created by a group of specialists and an American non-profit association to answer the most common questions that patients and their family have when diagnosed with Melanoma or have a recurrence.
Contact: Virginia Aznar de Carillo – virginia.aznar@mfar.net


Making awareness and education available is crucial. Since 2006, the Foundation has worked to raise awareness of melanoma and non-melanoma skin cancers focusing on education, prevention and the need for improved patient care.
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