For more information about ocular melanoma, please click on the following links to download-able documents we have created with the permission of CureOM, an initiative of Melanoma Research Foundation.  Thank you to the team at CureOM for their inspiration and support:

Ocular Melanoma Fact Sheet
Questions to Ask Your Doctor – Primary OM 
Questions to Ask Your Doctor – Metastatic OM 
OM Fact Sheet – Follow-Up Care Questions
OM Fact Sheet – Caregiver Questions

 

These resources are now also available in French, click here to view

Some online patient forums are discussing ocular melanoma:

Metastatic Ocular Melanoma Group – this is a closed group on Facebook, but is very active, informative, international, and worth the time for patients or their caregivers to apply to join.

Melanoma Research Foundation: Cure Ocular Melanoma Forum (U.S.)

The Eye Cancer Network (U.S.)

Save Your Skin Foundation hosts a Patient Support Group the first Thursday of every month, open discussion via webinar platform or call-in by phone. Click here to get the details:  Patient Support Group Webinars

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Listed above are a few sources of information and support you might find useful. These groups are not connected to Save Your Skin Foundation. We are providing the links as useful sources of information but do not monitor content for accuracy and quality.

NOTE: The information on the Save Your Skin Foundation website is not intended to replace the medical advice of a doctor or healthcare provider. While we make every effort to ensure that the information on our site is as current as possible, please note that information and statistics are subject to change as new research and studies are published. 

Making awareness and education available is crucial. Since 2006, the Foundation has worked to raise awareness of melanoma and non-melanoma skin cancers, and ocular melanoma, focusing on the need for improved patient care.
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