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See what we have planned for Melanoma Awareness Month 2022!

This year, Save Your Skin Foundation is running local, national and international campaigns to raise awareness on the importance of prevention and early detection of skin cancers. See a full list of our Melanoma Month initiatives HERE.

 

Press Release

Click here to read the news, April 29, 2022: Save Your Skin Foundation Runs Local, National and International Campaigns to Increase Skin Cancer Awareness During Melanoma Awareness Month

 

A common diagnosis with a rare outcome – Helen’s Story

Almost a decade ago, in 2013, Helen found a spot along her hairline that worried her. Two different doctors told her it was nothing to worry about before a dermatologist recognized it as cancerous and had it removed. And that was that, she was assured. Most skin cancers are easily dealt with and life goes on. But, based on her pathology report, Helen had a feeling that this ordeal was far from over.

It takes a village to stand up to cancer: Helen’s story via Macleans.ca

 

Sty-Lives OPHA Challenge

We have partnered with the Ontario Professional Hairstylist Association (OPHA) to create the Sty-Lives OPHA Challenge, which aims to train 200 hair professionals to detect potential skin cancers by May 31, 2022.

The initiative behind the challenge is Styling Hair & Saving Lives (Sty-Lives). Led by two medical students, with the support of SYSF, it aims to empower and educate hairstylists and barbers to detect suspicious skin lesions on the ears, face and scalp of their clients. Participating salons and barbershops are provided with training materials and resources and are taught how to detect suspicious spots. The purpose of the project is to help facilitate communication between the client and their healthcare provider, leading to earlier detection of potentially dangerous skin cancers.

As of this writing, the Sty-Lives OPHA Challenge has already reached 83% of its recruitment goal.

 

Melanoma Month Apparel

Check out our Melanoma Month Collection of Shirts perfect for the melanoma warrior or supporter in your life. As always, the proceeds from the sale of our SYSF merchandise goes directly towards supporting patients when they need it most. Visit our Etsy Store!

 

Thanks to Giving Hope Gala 2022 Sponsors & Supporters

This year’s pool party-themed gala was a lot of fun. A huge thank you to all who joined us and an even bigger thank you to all our sponsors who donated generously to make this event a success. We’ll have more information on the gala, including lots of pictures, in our next newsletter, so stay tuned!

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Announcing the GetSkinHelp mobile app!

We want you to #StopWaiting and get your skin checked as part of #DigitalHealthWeek!

SYSF is proud to be partnering with Skinopathy for the launch of their mobile app: GetSkinHelp

The GetSkinHelp mobile app allows individuals to access the SkinAI™ technology – an embedded artificial intelligence that allows people to quickly analyze for a selection of skin diseases, including skin cancers – and schedule video appointments with a licensed Canadian doctor who can help determine next steps.

From there, the doctor might suggest an in-person appointment or simply write a prescription, which will be sent to the patient’s home or pharmacy. What is most important is that the app gets a person in front of a doctor faster than traditional means.

Watch this video to learn more:

 

Download the new free #GetSkinHelp app and have your skin concerns analyzed by their SkinAI™ technology. You can then schedule an appointment with a skin doctor and have them check it out virtually. And best of all, it is all covered by provincial health plans!

#StopWaiting and download the app now to get the medical attention YOU need:

Download the app for Apple  |  Download the app for Android

 

See a licensed doctor and heal your skin. All online. On any device.
And covered by Canadian health cards.

In the summer of 2020, Dr. Colin Hong and entrepreneur Keith Loo noticed that the medical delays caused by the pandemic had resulted in greater occurrences of late stage skin cancers being diagnosed. A few months later they created Skinopathy, a medtech company with one simple goal: find answers on how they can help solve this growing public concern.

Save Your Skin Foundation is proud to support the launch of GetSkinHelp – a new service covered by Canadian health cards that allows people to get prompt and virtual medical attention when it comes to skin diseases and skin cancers. Click here to read the press release

At Save Your Skin Foundation, we are an organization dedicated to reducing skin cancers in Canada and providing compassionate support to those living with skin cancer. And we are always on the lookout for ways that can help with that mandate, but we also acknowledge we are not the experts on advanced technology.

As part of Digital Health Week and the #StopWaiting and Get Skin Help campaign, with the folks at Skinopathy, we hosted this roundtable that will help us understand how healthcare is changing due to new technologies, and what needs to happen to keep patients safe. 

The Future of Healthcare – Just Because We Can, Doesn’t Always Mean We Should

Healthcare and technology luminaries discuss how modern technology and social trends are changing healthcare, but are they all good things and what can be done to safeguard patients?

Moderated by Dr. Jonathan Reichental, with Guests – Ashley Casovan, Pirth Singh, and Keith Loo. Click here to view the Roundtable Discussion:

 

#StopWaiting and GetSkinHelp

Download the app for Apple  |  Download the app for Android

***Moderator***

Dr. Jonathan Reichental

Dr. Reichental is the founder of the advisory, investment, and education firm, Human Future. He is also a multiple-award-winning technology and business leader whose career has spanned both the private and public sectors. Most notably, he served as the chief information officer for the City of Palo Alto in California and in 2017 was named one of the top 100 CIOs in the World.

***Guests***

Ashley Casovan

Ashley has been at the forefront of building tools and policy interventions to support the responsible use and adoption of innovative technologies, both with her work at the Government of Canada, and now as the Executive Director of the Responsible AI Institute. She was also named as one of the top 100 most influential Young People in Government by Apolitical in 2018.

Pirth Singh

Pirth is a government maverick and trailblazer who has helped the government of Canada embrace open source technologies. He is now the Assistant Director General for the Industry Canada Innovation, Science and Economic Development team where he is leading the work on the development and implementation of digital credentials.

Keith Loo

Keith is the CEO and Co-Founder of Skinopathy, a Canadian medical technology startup that is revolutionizing the patient circle-of-care. He is heavily involved in the Canadian tech start-up community, consults out of several incubators and accelerators in the Greater Toronto Area, and is an entrepreneurship instructor at the Schulich School of Business.

 

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Move for Melanoma After Party

Join the funnest part of MOVE FOR MELANOMA this year by joining our VIRTUAL AFTER PARTY! Celebrate with the Save Your Skin team, donors and fellow participants! Everyone is welcome!

The After Party will take place on Sunday, September 26th, 2021 at 5pm PT | 8pm ET on a platform called Topia. If you attended our virtual Giving Hope Gala in the spring, then you will know that Topia is a fun, new, online chat platform that allows us to connect virtually in a more human way. You’ll easily be able to move in and out of conversations with other attendees like you would in person with the platform’s spatial video, while also exploring a world full of surprises.

In the meantime, click here to share, participate in, and stay up to date on the progress of our 3rd annual Move for Melanoma event!

 

 

 

 

 

 

 

 

 

What you’ll need:

  • A computer or a tablet – You’ll need a Windows or Mac desktop or laptop computer equipped with a camera, or a Android Tablet or Ipad. For the best experience on Android tablets please use “desktop mode” in Chrome. 
  • A supported web browser – Topia works best on Google Chrome, Edge, and Brave on desktop and laptop computers. For best results we recommend using one of these three browsers.
  • Headphones – There is ambient sound in Topia which is personal to you. Headphones ensure a great experience. Without headphones, higher volume can result in feedback for other guests or mixed sounds which isn’t fun for anyone.

 

How to join:

  • On September 26th at 5pm PT | 8pm ET, click on this link to join: https://topia.io/save-your-skin-foundation. Don’t bother trying to go on beforehand as it will not be available.
  • When you first go in, you will be asked to choose a display name.
  • Your browser will ask for permission to use your camera and audio. If you have Zoom/Teams/Skype open you won’t be able to do this, so please make sure they’re closed first.

 

What to do once you’re in:

  • You can move around the space using either mouse clicks or your arrow cursor buttons.
  • You hear and see people better the closer you are to their little “Topi,” or person.
  • If you walk away from people you hear and see them less. People “fade out” as they get farther away.
  • As you explore, notice when your cursor turns into a pointer. This indicates that the object your mouse is on has a function. Click to interact with the object. 
  • You can mute yourself or others by clicking the speaker icon in the top right corner of your video or theirs. When muted the speaker will turn from black to red.
  • To send a private message to someone at the gala, click on the envelope symbol on their video. If someone sends you a private message, the envelope symbol to the left of your screen will become red. 

 

For complete instructions on how to use Topia and join the party, click here!

 

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Train Like the Canucks

We are thrilled to be partnering with Vancouver Canucks’ JT Miller and his wife Natalie this year to fundraise during Move for Melanoma.

Train Like the Canucks is a team that can be joined by anyone. People who join the team are challenged to complete a workout designed by JT Miller himself with the help of his trainer, which emulates a typical workout performed by the Vancouver Canucks hockey players.

All who join the team will be entered into a draw to win a signed Vancouver Canucks’ jersey and other prizes.

Funds raised by Train Like the Canucks will go to Save Your Skin Foundation, the only organization in Canada that supports skin cancer patients financially when they need it most, in the form of treatment costs, flights, accommodation and other necessary but costly expenses incurred while receiving treatment.

To learn more about JT Miller and his wife’s connection to Save Your Skin Foundation, watch the short video below.

Join Train Like the Canucks

 

Q&A

 

How can I join team Train Like the Canucks? 

To join, start by clicking here to register. On the registration page, select “Train Like the Canucks” from the list of activities. If you’re a new user, create an account. If you’re a returning participant, login to your existing account. *If you’ve already registered for another team for this year’s event, you will have to join with a different account using a different email address.* There is a $25 registration fee to join the Train Like the Canucks team.

Does it cost money to be part of Train Like the Canucks?

There is a $25 fee to be part of Train Like the Canucks. All proceeds will go directly to supporting skin cancer patients in need. You are also encouraged to make a donation and to invite your friends and family to support the cause. We thank you in advance for your support.

When will I receive the Canucks workout plan?

Once you are registered with Train Like the Canucks, you will receive the  workout plan by email within a couple of weeks. If you don’t receive it within two weeks, please look in your spam folder or contact marianne@saveyourskin.ca.

I tried joining Train Like the Canucks but I got an error message saying I’m already registered. What should I do? 

Unfortunately, you cannot be part of more than one team with the same account. That means that if you’ve already registered for Move for Melanoma this year, you’ll have to create a separate account to join Train Like the Canucks. To do so, you will need to use a different email address. If you don’t have two email addresses and want to join, please email marianne@saveyourskin.ca to make arrangements.

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Move for Melanoma 2021

Move for Melanoma is back!

This year, we’ll be joined by Vancouver Canucks’ JT Miller and his wife Natalie to raise funds for melanoma skin cancer. 

Move for Melanoma is an activity challenge that takes place across Canada. The goal of the event is to bring awareness to melanoma, non-melanoma skin cancer and ocular melanoma, while raising funds to support patients affected with these illnesses when they need it most.

This year, the event will take place on September 25-26th, 2021. As always, participants will be able to choose a physical challenge of their choice to complete on the weekend of the event. Participants will form teams and, together with their friends and family, try to reach their personal fundraising goals.

To facilitate the whole thing, again this year we will be using a custom website that allows people to register, donate, solicit donations, track progress and promote the event all in one place. The website also includes many resources for participants to help them get ready, and a Q&A page for more information.

If you’re interested in joining us, please visit Move for Melanoma 2021 and register now.

 

Save Your Skin Foundation is the only organization in Canada that supports skin cancer patients financially when they need it most. All the money raised through your donations goes directly to patients in the form of cab fares, treatment costs, flights, accommodation and other necessary but costly expenses incurred while receiving treatment.

Whether you’re a survivor who wants to bring hope to newly diagnosed patients, the family member or friend of a patient who wants to send a powerful message of solidarity, or a patient who wants to help change the face of cancer for ever, we invite you to take a stand against melanoma and to move with us this September!

Hand in hand, we fight melanoma together!

          

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SYSF Around the World

“SYSF works hard to bring resources from around the world to give Canadian skin cancer patients the latest information on treatment options and disease management.

This year our May campaigns have gone around the globe – from our long-standing participation in the Global Coalition for Melanoma Patient Advocacy with the Melanoma Research Foundation to the Melanoma International Patient Advocates Coalition with AIM at Melanoma to Ocumel Canada’s partnership with the US, the UK, Ireland and Australia, all the way home to the NCCN Guidelines created in the US but used by our own Health Care Providers in Canada.

We hope you enjoy these resources and welcome questions or feedback any time.”

Natalie Richardson, Managing Director, SYSF

We are very pleased to congratulate the National Comprehensive Cancer Network on the release of a new valuable patient/caregiver resource! Save Your Skin Foundation is proud to have provided endorsement for the Guide and have our Managing Director Natalie featured on the cover!

The new NCCN Guidelines for Patients® on Melanoma provides an extremely comprehensive and informational reference for patients covering melanoma basics, testing, staging, treatment and recurrence. 

Click HERE to view and download the Guidelines

 

In collaboration with the Global Coalition for Melanoma Patient Advocacy, hosted by the Melanoma Research Foundation in the United States, Save Your Skin Foundation participated in the making of this skin check awareness video for Melanoma Awareness Month 2021, featuring melanoma patients and caregivers from across the globe demonstrating that the time it takes to do a skin self-exam is the same as that of drinking a cup of coffee. Check it out:

Need help performing a self skin check? Click here for a video tutorial!

 

Also:

Save Your Skin Foundation is a proud member of MI-PAC, a coalition of organizations across the globe committed to reducing the global melanoma burden through education, advocacy, and collaboration. MIPAC, hosted by AIM at Melanoma in the United States, works to increase awareness and change public perceptions of melanoma, empower melanoma patients to take an active role in their care, and effect change in regulatory policies to optimize treatment and care.

Watch for our upcoming patient stories and continued awareness initiatives right here at home in Canada!  For more information or support please contact us at kathy@saveyourskin.ca / 1.800.460.5832

 

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Giving Hope Gala 2021

In Celebration of our 15th Anniversary, SYSF Presents the 2021 Giving Hope Gala!

Join us for a fun, virtual gala experience in a custom world created just for us! We’ll use a new online chat platform that allows us to connect virtually in a more human way. You’ll easily be able to move in and out of conversations like you would in person with the platform’s spatial video, all while supporting an important cause.

Plus, we’ll have lots of fun on-site activities to keep you entertained!

Why Attend

In real-time audio and video, you’ll be able to connect with Kathy Barnard and the Save Your Skin team, patients and survivors from across Canada, and cancer care stakeholders, all while raising funds for a great cause.

All you need is a computer with wifi, headphones and a comfortable place to be while you attend virtually! This event will also provide the latest information on sun safety, skin cancer prevention, melanoma and non-melanoma skin cancer treatment in Canada, upcoming SYSF initiatives and events, plus fun and surprises, all from the comfort and safety of your home.

Celebrate with us!

Mark your calendars. The Gala will take place on
Thursday, April 29, 2021 from 5-8pm PT, 8-11pm ET

Dress Code

This is a business casual event. We encourage you to dress to look polished while still being comfortable. And don’t forget to bring out your nicest cocktail glasses!

How to join the gala

The official party link will be sent to all ticket holders on the week of the gala.

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Sun Safety in the Winter

The arrival of frosty weather prompts the annual changes from t-shirts to turtle necks and flip flops to boots. While cold lemonade is left behind for hot chocolate, one routine that must remain through the seasonal shift is sun safety. Winter leads many to believe that sun protection is no longer required. In reality, fresh snow can reflect between 80-90% of UV rays. The reflection from snow combined with the impact of direct sunlight can therefore result in double exposure[efn_note]https://www.sunsmart.com.au/protect-your-skin/at-the-snow[/efn_note]

This high exposure can be especially worrisome while doing winter sports such as skiing and snowboarding. While practicing these sports, people are exposed to blankets of reflective snow along with the consequences of both the sun and the altitude. At higher elevations, UV radiation is absorbed at a lower rate and as a result the UV rays are considerably stronger. The World Health Organization has noted that a 1000 meter increase in altitude is associated with an increase of nearly 10 per cent in UV radiation[efn_note]https://www.who.int/news-room/q-a-detail/radiation-ultraviolet-(uv)[/efn_note]. To put that into perspective, the ski resort with the highest elevation in Canada is 2,730 meters. According to the estimation, the ski resort faces almost a 30% increase in UV levels due to altitude[efn_note]https://www.skiresort.info/ski-resorts/canada/sorted/mountain-altitude/[/efn_note]

In addition to this, cloudy skies are not enough to stop the penetration of the sun’s rays. The clouds are actually thought to make the sun more harmful because they cause an unpredictable scattering effect of UV rays[efn_note]https://www.who.int/news-room/q-a-detail/radiation-ultraviolet-(uv)[/efn_note]

Taking all of this into consideration, there are actions that can be taken to stay safe from the sun throughout winter. First and foremost, it is advised to wear a sunscreen that is  waterproof[efn_note]https://www.mountainwarehouse.com/expert-advice/how-to-avoid-sunburn-on-slopes[/efn_note]. This sunscreen should be applied and reapplied especially to often missed areas like the nose, ears, neck and chin. Additionally, layering clothing protects the rest of the body from sun exposure and provides warmth from the cold weather[efn_note]https://www.skincancer.org/press/2018-winter-sun-safety/[/efn_note]. Finally, gear like helmets and goggles used for winter sports should not be neglected since they act as both a protectant from injuries and the beaming sun[efn_note]https://www.mountainwarehouse.com/expert-advice/how-to-avoid-sunburn-on-slopes[/efn_note]. Evidently, winter brings about changes in attire, activities and weather but the importance of sun safety remains.

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Register Now for A Vikings’ Challenge

A Viking’s Challenge is Back!

Last March, Chris Isfeld completed a massive challenge, a challenge no one ever thought he’d be able to complete only a couple of years before. Three years after being diagnosed with late stage melanoma and becoming partially paralyzed from the waist down, he ran 30km across frozen Lake Winnipeg and raised almost $20,000 for melanoma patients.

Building on last year’s enormous success, Chris invites you to join A Viking’s Challenge this year by running a distance of your choice anywhere in Canada. By channeling our inner Vikings, we will make a powerful statement of support for Chris’s heroic journey and help support other melanoma patients so they can, one day, be victors themselves.

To learn more about Chris’s story and last year’s challenge, click here.

Register

 

Event Details

When: March 6-7, 2021 – all day
Where: Because of the pandemic, the event will take place virtually, allowing participants to run any distance they choose from any location in Canada and beyond.
How: To participate, you must first register here and pledge to run a certain number of kilometres. We will keep a running tally of the number of kilometres pledged and see how many times we can “cross” Lake Winnipeg.
Each participant will have the option to get a free medal to commemorate their participation. Special t-shirts and other merchandise are also available for purchase in our Etsy store!

How many times will we cross the lake this year?

As of this writing, 13 participants have already pledged to run a total of 205km (last updated on Jan. 18). What will you pledge to run?
As always, every dollar raised through this event will go directly to assisting melanoma, non melanoma skin cancer and ocular melanoma patients meet their everyday needs during treatment in the form of transportation, accommodation, child care, lost wages and more.
So what are you waiting for? Register now for A Viking’s Challenge and start training to channel your inner Viking!

 

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Happy Holidays from the SYSF Team!

From Save Your Skin Foundation’s Founder and President, Kathy Barnard, here is a message of thanks to all those who supported the Foundation this past year. SYSF’s team is so very grateful to all those who helped us as we continued offering the best support possible to melanoma, non-melanoma skin cancer and ocular melanoma patients and caregivers, despite the unprecedented challenges we faced this year.

Warmest wishes for a happy holiday season and a wonderful New Year. With lots of love.

 

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