The Ocumel Canada team has been very busy working on initiatives and strategies to help bring awareness to Ocular Melanoma (OM) and improve care pathways for patients across Canada. In the spring we conducted a patient/caregiver survey with the intent to gather current information about primary and metastatic OM patient experiences across the country, from diagnosis and genetic testing options, to varying methods of treatment.
We deeply appreciate respondents’ time in filling out this survey, and we have now released a comprehensive report detailing their feedback.
Please click here to view the full report. This data helps inform our work, and we share it with the treating physicians who handle our cases every day. We work with treaters and treatment providers to create an ongoing and open dialogue which we believe will serve patients and their families in the most positive way. We welcome any questions or feedback – please email ocumelcanada@saveyourskin.ca to get in touch!
And in other Ocumel Canada news…
We have expanded our participation in the annual SYSF event called “Move for Melanoma” – an activity challenge across Canada to raise funds for melanoma, non-melanoma skin cancer and ocular melanoma patients. For the last two years OM patients and supporters have created their own teams on the Move for Melanoma platform, and they are welcome to do so again this year! But for those who may be just meeting us for the first time, or who might simply like to support Ocumel Canada with a donation, we have created Team Ocumel Canada – click here to check it out.
Save Your Skin Foundation is the only organization in Canada that supports skin cancer and ocular melanoma patients financially when they need it most. All the money raised through donations goes directly to patients in the form of cab fares, treatment costs, flights, accommodation and other necessary but costly expenses incurred while receiving treatment.
To join the movement, our friend Laurence has shared his story and is a spokesperson and feature patient for this event. Laurence has been fighting a battle with Ocular Melanoma for almost four years. Thanks to our Move For Melanoma fundraisers and donors, Save Your Skin Foundation can continue helping Laurence travel to receive a promising new treatment. Read Laurence’s story HERE.
Download these posters for print, and be ready to register for Move for Melanoma 2021!
Please note – these resources are all available in French – email us at marianne@saveyourskin.ca for French.
ALSO! Check out our new Ocumel Canada merchandise
Get your shirt today to help support Team Ocumel Canada and the work we do, supporting OM patients across Canada:
