Francais
info@saveyourskin.ca

News

Giving Hope Gala 2022 Recap

~ le français suit ~

Thanks to all supporters of our 2022 Giving Hope Gala!

From all of us at Save Your Skin Foundation, we wish to express heartfelt appreciation for all of the love we received in support of our 2022 Giving Hope Gala. Thank you to all who purchased tickets, made donations, joined us at the event, sponsored the Gala, donated gifts to the auction – everyone! Not only did we have a blast hanging out around the pool, but we raised important funds for melanoma, non-melanoma skin cancer and ocular melanoma patients.

Thanks also to:

  • The devoted and caring oncologists, dermatologists, nurses, and medical teams who look after us and all of the patients and caregivers we support;
  • Our sponsors and funding partners for supporting our work tonight and throughout the year;
  • Our team of volunteers without whom we couldn’t do so much;
  • Everyone who helped put this event together – our amazing team – Marianne, Amy, Natalie, Kathy and Rosemary, and our board of directors, family and friends who always pitch in;
  • And most of all, the patients, survivors, and caregivers who are behind the Foundation from all over Canada. They are the inspiration behind our devotion to their well-being, and we are honoured to work on their behalf every day;
  • A HUGE thank you to the amazing and hilarious host of our Gala Awards Ceremony, Professor Mark Z. Spot! If you missed the ceremony, you can watch the short video below to find out who won.


Merci à tous ceux qui ont soutenu le Gala donner l’espoir 2022 !

De la part de toute l’équipe de la Fondation Sauve ta peau, nous tenons à exprimer notre profonde gratitude pour tout l’amour que nous avons reçu à l’occasion de notre Gala donner l’espoir 2022. Merci à tous ceux qui ont acheté des billets, fait des dons, se sont joints à nous lors de l’événement, ont commandité le gala, ont donné des articles pour la vente aux enchères – tout le monde ! Non seulement nous avons eu beaucoup de plaisir à faire la fête autour de la piscine, mais nous avons également récolté des fonds importants pour les patients atteints de mélanome, de cancer de la peau non mélanome et de mélanome oculaire.

Merci également :

  • Aux oncologues, dermatologues, infirmières et équipes médicales dévoués et attentionnés qui s’occupent de nous et de tous les patients et soignants que nous soutenons;
  • Aux commanditaires et partenaires financiers qui ont soutenu notre gala et notre travail tout au long de l’année;
  • À notre équipe de bénévoles sans qui nous ne pourrions pas faire le travaille important que nous faisons.
    À tous ceux qui ont contribué à l’organisation de cet événement – notre équipe formidable – Marianne, Amy, Natalie, Kathy et Rosemary, ainsi que notre conseil d’administration, nos familles et nos amis qui nous aident toujours;
  • Et surtout, aux patients, survivants et soignants qui se sont joints à nous lors du gala, ou qui soutiennent la Fondation à travers le Canada. Ils sont la source d’inspiration de notre dévouement à leur bien-être, et nous sommes honorés de travailler en leur nom chaque jour;
  • notre lettre de remerciement ne serait pas complète sans un ÉNORME merci à l’hôte incroyable et hilarant de notre cérémonie de remise des prix du gala, le professeur Mark Z. Spot ! Si vous avez manqué la cérémonie, vous pouvez regarder la courte vidéo suivante pour découvrir les gagnants.

 

 

 

Read more

See what we have planned for Melanoma Awareness Month 2022!

This year, Save Your Skin Foundation is running local, national and international campaigns to raise awareness on the importance of prevention and early detection of skin cancers. See a full list of our Melanoma Month initiatives HERE.

 

Press Release

Click here to read the news, April 29, 2022: Save Your Skin Foundation Runs Local, National and International Campaigns to Increase Skin Cancer Awareness During Melanoma Awareness Month

 

A common diagnosis with a rare outcome – Helen’s Story

Almost a decade ago, in 2013, Helen found a spot along her hairline that worried her. Two different doctors told her it was nothing to worry about before a dermatologist recognized it as cancerous and had it removed. And that was that, she was assured. Most skin cancers are easily dealt with and life goes on. But, based on her pathology report, Helen had a feeling that this ordeal was far from over.

It takes a village to stand up to cancer: Helen’s story via Macleans.ca

 

Sty-Lives OPHA Challenge

We have partnered with the Ontario Professional Hairstylist Association (OPHA) to create the Sty-Lives OPHA Challenge, which aims to train 200 hair professionals to detect potential skin cancers by May 31, 2022.

The initiative behind the challenge is Styling Hair & Saving Lives (Sty-Lives). Led by two medical students, with the support of SYSF, it aims to empower and educate hairstylists and barbers to detect suspicious skin lesions on the ears, face and scalp of their clients. Participating salons and barbershops are provided with training materials and resources and are taught how to detect suspicious spots. The purpose of the project is to help facilitate communication between the client and their healthcare provider, leading to earlier detection of potentially dangerous skin cancers.

As of this writing, the Sty-Lives OPHA Challenge has already reached 83% of its recruitment goal.

 

Melanoma Month Apparel

Check out our Melanoma Month Collection of Shirts perfect for the melanoma warrior or supporter in your life. As always, the proceeds from the sale of our SYSF merchandise goes directly towards supporting patients when they need it most. Visit our Etsy Store!

 

Thanks to Giving Hope Gala 2022 Sponsors & Supporters

This year’s pool party-themed gala was a lot of fun. A huge thank you to all who joined us and an even bigger thank you to all our sponsors who donated generously to make this event a success. We’ll have more information on the gala, including lots of pictures, in our next newsletter, so stay tuned!

Read more

Ocumel Canada Seeking Input for Ocular Melanoma Patient Experience Survey

~ Le français suit ~

Ocumel Canada invited all ocular melanoma patients at any stage, whether or not they have been treated with KIMMTRAK® (tebentafusp-tebn) for metastatic OM, to participate in this anonymous survey intended to gather patient/caregiver perspectives to inform treatment recommendations. We were looking for ocular melanoma patients to share their treatment experiences to help inform Save Your Skin Foundation’s treatment recommendations to the CADTH Common Drug Review (CDR) and to pan-Canadian Oncology Drug Review (pCODR).

By providing direct patient feedback we can help inform Canadian government decision-makers of the patient need, and potentially increase treatment options, therefore improving treatment outcomes.

This survey is now closed – stay tuned for the resulting report!

Thank you for your time. Together we can make a difference.

 

Nous invitons tous les patients atteints de mélanome oculaire, quel que soit leur stade, qu’ils aient ou non été traités par KIMMTRAK® (tebentafusp-tebn) pour une MO métastatique, à participer à ce sondage anonyme destiné à recueillir le point de vue des patients et des soignants afin d’élaborer des recommandations de traitement.

En fournissant des commentaires directs des patients, nous pouvons aider à informer les décideurs sur les besoins des patients, et potentiellement augmenter les options de traitement, améliorant ainsi les résultats du traitement.

Nous vous remercions de votre temps. 

Read more

Updates on the Sty-Lives Program

Launched in December 2021, the Styling Hair and Saving Lives – Sty-Lives – program has been a huge hit!  Hair professionals, hair salons, and barbershops all across Canada are registering and using the resources created to help in the early detection of skin cancers. Click HERE to learn more about the free training program and resources, and see below for some of the media coverage the program is getting across Canada and in the U.S.

Recently, we also launched the Sty-Lives OPHA Challenge in partnership with the Ontario Professional Hairstylist Association!  Read more HERE and click HERE to watch the video about the program.

Stay tuned for announcements on additional partnerships we are building!

 

CBC

Global News Radio

CTV News

CHIPCHICK

BeautyCouncil.ca

Good Morning America
ABC News
yahoo!news

Eastlink
NY Post
Castanet Penticton

Squamish Chief
The U.S. Sun
MSN

Read more

SYSF Seeking Input for Melanoma Patient Experience Survey

~ Le français suit ~

We invited all melanoma patients in any stage who received Keytruda™ or other systemic treatment(s) to complete the survey at the link below, intended to gather patient/caregiver perspectives to inform treatment recommendations. Patients sharing their treatment experiences helps inform Save Your Skin Foundation’s treatment recommendations to the CADTH Common Drug Review (CDR) and to pan-Canadian Oncology Drug Review (pCODR).

By providing direct patient feedback we can help inform Canadian government decision-makers of the patient need, and potentially increase treatment options, therefore improving treatment outcomes.

This survey is now closed – stay tuned for the resulting report!

Thank you for your time. Together we can make a difference.

 

Nous invitons tous les patients atteints de mélanome, quel que soit le stade, ayant reçu le Keytruda™ ou un ou plusieurs autres traitements systémiques à répondre à ce sondage, destiné à recueillir le point de vue des patients et des soignants afin d’éclairer les recommandations de traitement.

En fournissant des commentaires directs des patients, nous pouvons aider à informer les décideurs sur les besoins des patients, et potentiellement augmenter les options de traitement, améliorant ainsi les résultats du traitement.

Nous vous remercions de votre temps. 

Read more

Looking Back at 2021

Our 2021 Annual Reports are out now!

It’s always a rewarding experience to look back on the past year and see how much the Foundation has accomplished.

Despite another year amid the pandemic, Save Your Skin Foundation and Ocumel Canada have continued to grow partnerships, operations and services, and reach more people touched by melanoma, non-melanoma skin cancer and ocular melanoma.

We are extremely grateful to our community of patients, caregivers, healthcare providers and sponsors who continue to inspire and support us in our endeavors.

Click on the images below to view the reports:

 

 

Read more

Get your tickets for our 2022 Giving Hope Gala: Virtual Pool Party Edition!

Join us for a fun, virtual pool party experience in a custom tropical world created just for us! Again this year, we’ll use an online video chat platform that allows us to connect virtually in a more interactive way. You’ll easily be able to move in and out of conversations like you would in person and take part in fun on-site activities, all while supporting an important cause!

The Gala will take place on Thursday, April 28, 2022 ~ 5-8pm PT, 8-11pm ET

Why Attend

Don’t miss the networking event of the year for the skin cancer community!

In real-time audio and video, you’ll be able to connect with Kathy Barnard and the Save Your Skin team, patients and survivors from across Canada, and cancer care stakeholders, all while raising funds for a great cause.

All you need is a computer with wifi and ear buds, a comfortable place to visit virtually, and your ticket! This virtual event gives you the closest thing to a real life party experience. Enjoy music, entertainment, games and great prizes!

All ticket purchases will receive a charitable donation tax receipt.

Celebrate with us ~ Click HERE to get your tickets!

Read more

A Viking’s Challenge 2022 Recap

A Viking’s Challenge 3rd Edition was last weekend and we couldn’t be happier with how the event unfolded.

In total, 51 people participated, running a combined total of 841 km, or the equivalent of 28 crossings of Lake Winnipeg. Though Chris Isfeld’s cancer recurrence and the side-effects from his treatment made it impossible for him to travel to Gimli, MB and run with Shawn Bjornsson, they were united in spirit, along with the 51 other participants across Canada, by the knowledge that they were helping bring awareness to an important issue. Together, they helped raise over $15,000 this year. And donations are still coming in!

The Weekend in Pictures

From top left: Alan Dann, Shawn Bjornsson and friends in Winnipeg, Shawn Bjornsson and friends in Gimli, Shawn Bjornsson and friends at Ship and Plough Tavern, Rosemary Westie and friends, Shawn Bjornsson and a friend, Shannon Lamb-Lebel, Shawn Bjornsson, Emily Chowne, Genevieve and Summer the dog, Rosemary Westie and friends.

 

Thank You to our Sponsors!

Many thanks to the businesses who generously sponsored “A Viking’s Challenge” this year:

  • Bristol Myers Squibb
  • Gimli Ice Festival
  • Ship and Plough Tavern
  • Lakeview Resort Gimli
  • Designer Closet Guys
  • BE Power Equipment

Read more

A Viking’s Challenge 2022 is this weekend!

Want to participate?  It’s not too late!

Event Details

When: The weekend of March 4 – 6, 2022
Where: Anywhere in Canada. Shawn Bjornsson will be running in Gimli, MB, the largest icelandic community outside of Iceland.
How: To participate, you must first register here and pledge to run a certain number of kilometres. We will keep a running tally of the number of kilometres pledged and see how many times we can “cross” Lake Winnipeg.

Each participant will have the option to get a free medal to commemorate their participation. Running shirts and other merchandise are also available for purchase in our Etsy store!

 

A few words from the Founder of A Viking’s Challenge

“Hi everyone, Chris Isfeld here. The last few months have been pretty rough for me. As some of you know, in late 2021, a large mass was found on my right adrenal gland. After fighting melanoma for 3 years and finally getting the all clear in December 2020, this was not the news I’d hoped for. So back I went to treatment, first some radiation and now immunotherapy.

Luckily, I have access to these treatments in my own province, but not all melanoma patients are so fortunate. Many patients end up having to pay out of pocket to get to and from treatments, or worse, have to pay for treatments that aren’t covered. That’s why again this year, I’d like to invite you to participate in A Viking’s Challenge, the fundraiser I founded in 2020 to raise funds for melanoma patients.

Unfortunately, because of my treatment, I won’t be able to run the 30 km across Lake Winnipeg this year, but I’m inviting everyone to join the challenge and run or walk wherever you live. It would mean so much to me and I can assure you that you’d be helping make a big difference in someone’s life. To register or make a donation, visit bit.ly/AVC2022. Thank you!”

 

 

Click here to read more about it in the Abbotsford News

 

Read more

New Report Reveals Opportunities to Improve Cancer Diagnosis – The Most Inefficient Area of Cancer Care in Canada

Cancer is the leading cause of death in Canada. Due to missed diagnoses during the pandemic, we are now facing an echo pandemic in cancer.  Before the pandemic, it was already estimated that 2 in 5 Canadians (40%) would get cancer in their lifetime and 1 in 4 (25%) would die from their disease. With COVID-19, things have just become worse. Alberta, British Columbia, and Quebec reported a 20-23% drop in cancer diagnoses from June – September 2020. It is predicted that cancer care disruptions during the pandemic could lead to 21,247 more cancer deaths in Canada over the next decade. The represents 355,173 years of lost life expected due to pandemic-related diagnostic and treatment delays.

All.Can Canada has launched a new report titled ‘Optimizing Diagnosis in Canadian Cancer Care’, which reveals findings from a comprehensive research project including a literature review, interviews with patients and caregivers, and a survey of healthcare providers across Canada.

“If you don’t get a swift diagnosis and enter into cancer care in a timely fashion, treatment can’t start. We need to listen to what cancer patients say would improve their experience of diagnosis,” says Kathy Barnard, who is a stage IV melanoma survivor, Founder of Save Your Skin Foundation, and a member of All.Can Canada’s steering committee. “People are cycling around trying to get their symptoms investigated for months, sometimes years. This was already happening before COVID-19 and now things are worse. Ignoring the findings of this report would be a missed opportunity to do the right thing by people who desperately need cancer care and make changes that would make a real difference.”

All.Can Canada’s report reveals the labyrinth most people experience when trying to diagnose a suspicion of cancer. From the moment a person tries to interact with a healthcare provider over a suspicion of cancer to the point they receive their diagnosis, seven outcomes were identified as critical to a quality diagnosis experience:

1) Swiftness of the diagnosis process;
2) Validation of concerns by primary care providers;
3) Excellent patient-provider communication;
4) Effective provider-provider communication;
5) Better information;
6) Integrated psychosocial support; and
7) Coordinated and managed care.

All.Can Canada is a patient-led, multi-stakeholder initiative committed to ensuring swift, accurate, and appropriately delivered diagnosis of cancer in Canada.

Find out more about patient-reported inefficiencies and opportunities for improvement in All.Can Canada’s new report.

Download the report: https://bit.ly/3AUhQeO
Or download the summary: https://bit.ly/3oDWvS8

Read more