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SYSF Webinar: Skin Cancer A-Z

Webinar Recording Available: “Melanoma and Non-Melanoma Skin Cancers From A-Z” with Dermatologist Thomas G. Salopek, MD FRCPC, Professor, Department of Medicine, Division of Dermatology, University of Alberta.

This webinar helps educate the general public about the dangers of UV exposure, and it also addresses what options patients and their families have if they are diagnosed with any form of skin cancer. Learn about skin cancer statistics in Canada, sun protection and safety, and details on treatment for primary and metastatic basal cell carcinoma, squamous cell carcinoma, merkel cell carcinoma, and melanoma and melanoma sub-types. For more detailed information on immunotherapy and targeted therapy for each of these please view our webinars on each, at https://saveyourskin.ca/webinars-video-resources/

This webinar presentation is in collaboration with Save Your Skin Foundation, La Roche-Posay, the Quebec Cancer Foundation, and the Alberta Society of Melanoma.

To view the presentation recording, click here: https://youtu.be/Ae_QXVAk_lY

To view the French recording please click here: https://youtu.be/Yoh38INeDgo

To learn more about treatment options for melanoma, please click here to see another of our past webinars detailing immunotherapy and targeted therapy:  https://youtu.be/nS9OAFgknwE

To learn all about the NCCN Patient Guidelines to which Dr. Salopek referred, please click here: https://saveyourskin.ca/nccn-guidelines-for-skin-cancers/

For questions or more information on anything presented here please email natalie@saveyourskin.ca or reach Kathy at 1-800-460-5832

 

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Giving Hope Gala Special Guest!

Hey our biggest Gala event is coming up…”Covid style”!

Buy a ticket and come for some fun – $35 gets you in.

This gala is all done on a virtual platform…wait, what does that mean? Well when you click the link to enter, you “spawn” a comic character that becomes you and you land in the main area where you are greeted by others. Your “person” walks with the others to the tables as the event starts out. Yes there is skin cancer info there but also…dancing!! mingling! and chatting. Get your person to walk up to another and you can chat with anyone, using your computer camera and ear buds! So great, so inventive!! Its going to be fun!! And… you will get to see one of our star personalities, Professor Mark Zee Spot!!

Join us for a fun, virtual gala experience in a custom world created just for us! We’ll use a new online chat platform that allows us to connect virtually and easily move in and out of conversations like you would in person.

Tickets are just $35!
Charitable donation receipts will be provided

All you need is a computer with wifi and video, some headphones, and a comfortable place to visit virtually!

 

 

 

Be ready for our Giving Hope Gala with the Save Your Skin Foundation Signature Cocktail (or Mocktail):

Tequila Stay-Out-of-the-Sun(Rise) !

The Giving Hope Gala is going virtual this year, but that doesn’t mean it won’t be a night to remember. In fact, to help everyone get ready, we’ve secured a guest presentation by STAR PERSONALITY 

World-Renowned Mixologist Professor Mark Zee Spot! 

 

PLEASE CLICK HERE TO READ IMPORTANT INFORMATION BEFORE JOINING THE GALA

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COVID-19 Patient Impact Survey Report – Spring 2021

To follow up with our COVID-19 Impact Survey of April 2020, we ran a second survey from January – February 2021 to assess the continued impact of the pandemic on the medical needs of patients with melanoma, ocular melanoma, and non-melanoma skin cancer.

Click here to read the full report, or scroll to the last page to read the conclusions and the comparison to last year’s survey results.

Thank you to all who participated.  

If you need any additional information about or support with COVID-19 issues, please visit COVID-19 Information Hub for Melanoma and Skin Cancer Patients

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Giving Hope Gala 2021

In Celebration of our 15th Anniversary, SYSF Presents the 2021 Giving Hope Gala!

Join us for a fun, virtual gala experience in a custom world created just for us! We’ll use a new online chat platform that allows us to connect virtually in a more human way. You’ll easily be able to move in and out of conversations like you would in person with the platform’s spatial video, all while supporting an important cause.

Plus, we’ll have lots of fun on-site activities to keep you entertained!

Why Attend

In real-time audio and video, you’ll be able to connect with Kathy Barnard and the Save Your Skin team, patients and survivors from across Canada, and cancer care stakeholders, all while raising funds for a great cause.

All you need is a computer with wifi, headphones and a comfortable place to be while you attend virtually! This event will also provide the latest information on sun safety, skin cancer prevention, melanoma and non-melanoma skin cancer treatment in Canada, upcoming SYSF initiatives and events, plus fun and surprises, all from the comfort and safety of your home.

Celebrate with us!

Mark your calendars. The Gala will take place on
Thursday, April 29, 2021 from 5-8pm PT, 8-11pm ET

Dress Code

This is a business casual event. We encourage you to dress to look polished while still being comfortable. And don’t forget to bring out your nicest cocktail glasses!

How to join the gala

The official party link will be sent to all ticket holders on the week of the gala.

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Recap of A Viking’s Challenge 2021

A Viking’s Challenge 2nd Edition ended yesterday and we couldn’t be more happy with how the weekend unfolded.

In total, 64 people participated, running a combined total of 855 km, or the equivalent of 28.5 crossings of Lake Winnipeg. Though COVID-19 made it impossible for Chris Isfeld and Shawn Bjornsson, the co-founders of the challenge, to run together on the lake this year, they were united in spirit, along with the 62 other participants across Canada, by the knowledge that they were helping bring awareness to an important issue. Together, they helped raise almost $9,000 this year. And donations are still coming in!

Thank you to our sponsors!

Many thanks to the businesses who generously sponsored “A Viking’s Challenge” this year:
  • Be Power Equipment
  • Gimli Snowmobile Centre
  • RONA Gimli
  • Sobeys Gimli
  • Designer Closet Guys
  • Ship & Plough

 

 

The Weekend in Pictures

From top left: Chris Isfeld, Shawn Bjornsson, Natalie Richardson, Mike Allan, Rosemary Westie, Chris Isfelf and family, Tom Tomko, Shawn Bjornsson, Alan Dann and friends, Brett Knight, Delane Knight, Scott Barnard, Kathy Barnard, Rosemary Westie, Cathi Wetsch, Josée Pelletier, Karen and Brad Sheffield.

Medal Update

For those of you who participated and asked for a medal, you should be receiving it before the end of the month. If you didn’t participate or want another way to commemorate this event, consider buying a branded t-shirt instead!

 

Donate to show your support

If you’d like to show your support for this event, it’s not too late to donate. You can do so here.

As always, your donation will go directly to patients and their families so they can access the best treatment and care. This weekend, many of us were running knowing that the money we raised would go directly to the Stringer family, who is currently facing large treatment bills and having to stay away from home to treat side-effects.

On behalf of all the patients and families that have been supported by Save Your Skin Foundation over the years, a huge thank you for your support!

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What is Lymphedema?

Although we don’t often talk about it, Lymphedema is a common side effect of the surgery that many metastatic melanoma or non-melanoma skin cancer patients receive to remove nodal disease.  It affects men and women, and can be uncomfortable and often painful, affecting daily activity.

Most often, lymphedema affects the arms and legs, however, lymphedema can also occur in other parts of the body, including the head and neck.

Despite best efforts to prevent it, I myself was the lucky recipient of a lymphedema diagnosis in 2014 after CLND (Completion Lymph Node Dissection) surgery in my right groin following stage IIIB nodular melanoma diagnosis. To this day I am learning how to cope with this condition which affects my right upper leg, and through this research I found a supportive group right here in B.C. – British Columbia Lymphedema Association – and they work with similar groups across Canada.  Please see below for a full list of Lymphedema contacts in your area.

“Lymphedema is the abnormal buildup of fluid in soft tissue due to a blockage in the lymphatic system. The lymphatic system helps fight infection and other diseases by carrying lymph, a colorless fluid containing white blood cells, throughout the body using a network of thin tubes called vessels. Small glands called lymph nodes filter bacteria and other harmful substances out of this fluid. However, when the lymph nodes are removed or damaged, lymphatic fluid collects in the surrounding tissues, causing them to swell.  Lymphedema may develop immediately after surgery or radiation therapy, or it may occur months or even years after cancer treatment has ended.”  (Source)

People with lymphedema in an arm or leg may experience the following symptoms:

  • Swelling that begins in the arm or leg matching the quarter of the body treated for cancer
  • “Heavy” feeling in the arm or leg
  • Weakness or decreased flexibility
  • Rings, watches, or clothes that become too tight
  • Discomfort or pain, although often there is no pain
  • Tight, shiny, warm, or red skin
  • Skin that does not indent at all when pressed, or hardened skin
  • Thicker skin (hyperkeratosis)

 

Estimates from recent Canadian sources indicate that approximately 1 million Canadians have the incurable disease, many unaware of the true cause of their swelling which is often misinterpreted as fat. There are many causes of lymphedema. Lymphedema appears in two forms; a categorization based on the initial cause either primary or secondary.

Secondary lymphedema, presenting as swollen, heavy limb(s) and an immune system that can’t do its job, results from post trauma damage to the lymphatic system. Secondary Lymphedema can be triggered by accidents, injuries and cancer-related surgeries such as CLND (Completion Lymph Node Dissection) other non cancer surgeries, cellulitis infection, obesity & prolonged edema from other causes such as heart failure all of which can damage lymph nodes and lymphatic channels.

Primary lymphedema is less common but can occur at any stage in life from birth through to mid 50’s, a common age of onset. To read more about these types of Lymphedema, please visit BC Lymphedema Association – What is Lymphedema

Treatment of Lymphedema should be done by a Health Care Professional (HCP) who has been trained in the care of lymphedema/lipedema/lymphatic pathologies. Treatment may be with Combined Decongestive Therapy (CDT), CDT consists of Manual Lymph Drainage, Skin Care, Compression and Exercise. Or, it may be possible to use compression alone, under the supervision of a trained HCP.

There are a lot of things that a person, especially cancer survivors could do to ensure that lymphedema is delayed or the severity is reduced. The goal of the BC Lymphedema Association (BCLA) is to provide information and support for those newly diagnosed, uncertain about what is happening to them and where to turn for help. The majority of the medical profession know very little about lymphedema or how to treat it.

BCLA is a resource to help patients find therapist, fitters, and suppliers & learn more about how to manage their condition. For more information and to join in their World Lymphedema Day awareness events visit their website www.bclymph.org.

And in other provinces, please see the following:

Alberta Lymphedema Association – Alberta Lymphedema Association

Atlantic Clinical Lymphedema Network – About ACLN – Atlantic Clinical Lymphedema NetworkAtlantic Clinical Lymphedema Network (atlanticlymph.ca)

Lymphedema Association of Manitoba – Lymphedema Association of Manitoba (lymphmanitoba.ca)

Lymphedema Association of New Brunswick – Lymphedema Association of NB – Home | Facebook

Lymphedema Association of Newfoundland and Labrador – Lymphedema Association of Newfoundland and Labrador (lymphnl.com)

Lymphedema Association of Nova Scotia – Lymphedema Association Of Nova Scotia (lymphedemanovascotia.com)

Lymphedema Association of Ontario – Lymphedema Association of Ontario – Home (lymphontario.ca)

Lymphedema Association of Quebec – Lymphoedeme Lymphedema Association Quebec – Infolympho

Lymphedema Association of Saskatchewan – LAS – Lymphedema Association of Saskatchewan (sasklymph.ca)

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A Viking’s Challenge is Here!

Chris Isfeld and Shawn Bjornsson are getting ready for one epic weekend. On Saturday, March 6th, 2021, they’ll lace up their running shoes and set out to complete ‘A Viking’s Challenge‘ for the second year in a row.

This year, Chris Isfeld is planning on running 30 km with his girlfriend and two sons. Because of COVID-19 restrictions, he won’t be able to run on the lake, so instead, he’ll be running on the Matsqui Trail along the Fraser River near his home in Abbotsford, B.C.

Because of the warm weather, Shawn Bjornsson won’t be able to run on the lake either. So instead, he’s decided to run twice the distance of the lake, or a total of 60 km in one day!

“This will be a long, strenuous, exhausting day BUT this is nothing compared to the hundreds of hours so many people like my friend Chris have done getting treatment. So this run is for Chris and everyone that has needed treatment and support” he said of his plans.

As of this writing, 53 people have registered to run with them. Though they’ll be running in different locations all over Canada, they’ll be united by the knowledge that they are running in support of melanoma patients and survivors, people like Chris Isfeld, who four years ago, was diagnosed with late stage melanoma.

CHRIS’S STORY

Chris was given lifesaving immunotherapy treatment just in time. The treatment was challenging but it proved to be effective. The cancer stopped growing and the side effects became more manageable over the next few months. By December 2018, just one year after his melanoma diagnosis, he was lacing up his running shoes again.

The results of his latest PET/CT scan, on November 2, 2019, show an almost complete metabolic response; he is well on the way to becoming NED (No Evidence of Disease).

THE CHALLENGE

After he recovered, Chris had been frequently running and practicing yoga to overcome the physical and emotional anguish he was feeling.

In an interview with Global News, he said:

“A friend of mine, Shawn Bjornsson from Winnipeg, posted a photo after he did a 5K run in -40, and for some reason, I just made a comment and said, ‘Hey, I’ll race you across the lake,’ just as a joke, But a week later, I thought about it, and thought, ‘You know what, this is an absolutely great idea.’

“It gives me something to focus on, and obviously with my diagnosis, I had gotten to know the people at Save Your Skin Foundation very well, and decided that I should do it as a fundraiser and raise money for them.”

THE RACE

True to their Viking roots, they didn’t back down from a challenge. On March 7, 2020, they ran about 30 km from Grand Beach, Manitoba to Gimli, Manitoba, raising almost $20,000 for Save Your Skin Foundation. Read more about last year’s race here.

THIS YEAR’S CHALLENGE

Last year’s race was a personal challenge for Chris and his friend Shawn, but since so many expressed an interest in joining the challenge in future years, Chris has decided to open the challenge up to the general public this year. Because of the pandemic, the event will take place virtually, allowing participants to run any distance they choose from any location in Canada and beyond.

To participate, runners have to pledge to run a certain number of kilometres. So far, 53 people have pledge to run a total of 748 km, or the equivalent of 25 crossings of Lake Winnipeg!

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Save Your Skin is a Verified Voice on Healthing.ca

 

Verified Voice

Save Your Skin Foundation is very pleased to announce we are now a Verified Voice on Healthing.ca, providing a wide variety of informational articles including prevention, treatment options, melanoma staging, patient stories and more.

Please visit our profile HERE.

 

Healthing.ca

Healthing.ca is a destination for information on symptoms, diseases and treatments as well as insights on the latest health trends, research and the people who are disrupting health care as we know it.

 

 

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Skin Cancer in People of Colour

During Black History Month we want to bring awareness to how skin cancer and melanoma affect the Black community and people of colour.

Skin cancer is less common in people of colour, but when it does occur, it’s often diagnosed at an advanced stage and has a worse prognosis. This can be deadly when the person has melanoma. Treatment for any type of skin cancer can be difficult in the late stages.

About 52% of Black people and 26% of Hispanics find out they have melanoma when it has already spread, compared with 16% of White people.

One study, found an average five-year melanoma survival rate of only 67% in Black people versus 92% in White people.

According to experts, there’s a lower public awareness overall of the risk of skin cancer among people of colour.

Also, from the perspective of health-care providers, there’s often a lower index of suspicion for skin cancer in patients of colour, because the chances of it actually are smaller. So these patients may be less likely to get regular, full-body skin exams.

 

The warning signs of skin cancer are different in people of colour

 

In people of colour, skin cancer often develops on parts of the body that get less sun like the soles of the feet, lower legs, and palms, which makes detection more difficult. Up to 60 – 75% of melanoma in people of colour occurs on the palms of the hands, soles of the feet and the nail areas. This cancer may also begin around the anus, or on the genitals.

The risk factors for acral melanomas are not fully understood — acral meaning on the hands and feet — but sun is less likely to be a factor. In melanomas on the whole, UV radiation is certainly a major risk factor, and there are plenty of UV-induced melanomas and squamous cell carcinomas in people of colour, who can have a wide range of complexions, from very fair to very dark. But the proportion of skin cancers that occur in non-sun-exposed sites is greater in darker-skinned populations.

About 50% of basal cell carcinomas (BCCs) are pigmented (meaning brown in color) in darker-skinned patients. If you look at the typical photos of BCCs used in educational materials — most of which focus on fair skin — you’ll see a pink, pearly growth that may or may not be crusted. What you’ll almost never see is an image of a brown, slightly translucent lesion. Yet about half of BCCs in darker-skinned patients are brown, or pigmented, and thus easier to miss.

Save Your Skin Foundation, along with many other skin cancer organizations, is working to include more skin of colour in images of skin cancers.

 

SOURCES:

 

The Skin Cancer Foundation, https://www.skincancer.org/

American Academy of Dermatology Association, https://www.aad.org/

WebMD, https://www.webmd.com/

Gloster HM, Neal K. Skin cancer in skin of color. J Am Acad Dermatol 2006; 55:741-60. https://www.jaad.org/article/S0190-9622(05)02730-1/fulltext

 

 

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Young Winnipeg girl makes buttons for a good cause

A young Winnipeg girl named Drea has been busy during the pandemic making buttons for face masks. The ingenious buttons attach to your glasses to take the pressure off your ears.

With the help of her grandmother Suzanne, Drea launched ‘Designs by Drea’ and began making and selling the buttons in the summer of 2020.  It was always their intention to donate a portion from each sale to Save Your Skin Foundation.

Drea’s uncle Wes has stage 2 high risk melanoma and just finished a year of Immunotherapy treatment.

Last month Drea donated half of her profits to Save Your Skin Foundation, donating the other half to another Canadian skin cancer charity to support efforts to find a cure for melanoma.

You can still purchase buttons at $3.00 for one pair or $5.00 for 2 pair. To order email triathlonski@gmail.com

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