survivorship

WEBINAR: Latest news on melanoma/skin cancer/ocular melanoma from ASCO 2022

(le français suit)

Don’t miss our webinar with Dr. Marcus Butler, the Medical Oncology Disease Site Lead for Melanoma/Skin Oncology at Princess Margaret Cancer Centre and Assistant Professor of Medicine at the University of Toronto. He is also the Clinical Director for the Immune Monitoring Team at the Princess Margaret where he focuses on the immunologic impact of anti-cancer immunotherapies.

This webinar reviews late breaking news, key takeaways, clinical data and other updates presented at the American Society of Clinical Oncology (ASCO) Annual Meeting taking place in Chicago, Illinois, in June 2022.

Dr. Butler shares his key insights into what the landscape of melanoma, non-melanoma skin cancers, and ocular melanoma treatment looks like for the near future in Canada.

Click HERE to view the recording

WEBINAIRE : Mise à jour sur le mélanome/cancer de la peau/mélanome oculaire de l’ASCO 2022

Regardez l’enregistrement du webinaire avec le Dr Marcus Butler, responsable du site d’oncologie médicale pour le mélanome et l’oncologie de la peau au Princess Margaret Cancer Centre et professeur adjoint de médecine à l’Université de Toronto. Il est également le directeur clinique de l’équipe de surveillance immunitaire du Princess Margaret, où il se concentre sur l’impact immunologique des immunothérapies anticancéreuses.

Ce webinaire a passé en revue les dernières nouvelles, les points essentiels, les données cliniques et d’autres mises à jour présentées lors de l’assemblée annuelle de l’American Society of Clinical Oncology (ASCO) qui a eu lieu à Chicago, en Illinois, en juin 2022.

Le Dr Butler a partagé ses idées clés sur ce à quoi ressemble le paysage du traitement du mélanome, des cancers de la peau autres que le mélanome et du mélanome oculaire dans un avenir proche au Canada.

Cliquez ici pour le webinaire

SYSF Holiday Party 2021

You’re Invited!

Sunday, December 19th at 5pm PT / 8pm ET

This party will be hosted in our custom Topia virtual world, with lots of festive activities and surprises. This party is for all patients, family members and friends of the Foundation.

Come in your most festive apparel with your favourite holiday beverage!

Instructions for how to join the party

On Dec 19th, click here to start the party:

https://topia.io/save-your-skin-foundation

What you’ll need:

A computer or a tablet – You’ll need a Windows or Mac desktop or laptop computer equipped with a camera, or a Android Tablet or Ipad.
For the best experience on Android tablets please use “desktop mode” in Chrome.
A supported web browser – Topia works best on Google Chrome, Edge, and Brave on desktop and laptop computers. For best results we recommend using one of these three browsers.
Headphones/ear buds – There is ambient sound in Topia which is personal to you. Headphones ensure a great experience. Without headphones, higher volume can result in feedback for other guests or mixed sounds which isn’t fun for anyone.

How to join:

On December 19 at 5pm PT | 8pm ET, click on this link to join: https://topia.io/save-your-skin-foundation. Don’t bother trying to go on beforehand as it will not be available.
When you first go in, you will be asked to choose a display name.
Your browser will ask for permission to use your camera and audio. If you have Zoom/Teams/Skype open you won’t be able to do this, so please make sure they’re closed first.

What to do once you’re in:

You can move around the space using either mouse clicks or your arrow cursor buttons.
You hear and see people better the closer you are to their little “Topi,” or person.
If you walk away from people you hear and see them less. People “fade out” as they get farther away.
As you explore, notice when your cursor turns into a pointer. This indicates that the object your mouse is on has a function. Click to interact with the object.

See you there!!

#InItTogether Campaign – Melanoma Is Personal

We’ve teamed up with Hayley Wickenheiser again this year to bring awareness to those coping with a melanoma diagnosis. Summer is here, but if you’re not protecting yourself from the sun, the damage can be far-reaching. Melanoma is one of the top 10 cancers diagnosed in Canada and getting a diagnosis can be scary. Arming yourself with the right information you can literally change the course of your melanoma experience.

Ask about your mutation type. Do your research to find out your options. And know you are not alone in this.

Some Patients, Survivors, and Caregivers from the Save Your Skin Foundation family have come together share their story to inspire education and hope.

“I am newly diagnosed with metastatic malignant melanoma, and I plan to survive it.” – SHERI

“My melanoma came back, but I’m not letting fear in.” – BOB

“I was in end-of-life care when my doctor recommended I take part in a clinical trial.” – MIKE

“Learning that my melanoma was BRAF+ was a huge weight off my shoulders. That knowledge shaped my path through the disease.” – COLIN

“Melanoma research literally saved my life. Today I’m surrounded with the support of the melanoma community and I know they have my back.” – NATALIE

Check out this article in Elle magazine, dedicated to Canadians who have their own personal melanoma stories:

ELLE Canada – Summer is Back ~ Do you know what you need to know about melanoma?

Check out these “Melanoma is Personal” videos on YouTube And click here to see more clips on the SYSF youTube channel

SYSF Webinar: Skin Cancer A-Z

Webinar Recording Available: “Melanoma and Non-Melanoma Skin Cancers From A-Z” with Dermatologist Thomas G. Salopek, MD FRCPC, Professor, Department of Medicine, Division of Dermatology, University of Alberta.

This webinar helps educate the general public about the dangers of UV exposure, and it also addresses what options patients and their families have if they are diagnosed with any form of skin cancer. Learn about skin cancer statistics in Canada, sun protection and safety, and details on treatment for primary and metastatic basal cell carcinoma, squamous cell carcinoma, merkel cell carcinoma, and melanoma and melanoma sub-types. For more detailed information on immunotherapy and targeted therapy for each of these please view our webinars on each, at https://saveyourskin.ca/webinars-video-resources/

This webinar presentation is in collaboration with Save Your Skin Foundation, La Roche-Posay, the Quebec Cancer Foundation, and the Alberta Society of Melanoma.

To view the presentation recording, click here: https://youtu.be/Ae_QXVAk_lY

To view the French recording please click here: https://youtu.be/Yoh38INeDgo

To learn more about treatment options for melanoma, please click here to see another of our past webinars detailing immunotherapy and targeted therapy: https://youtu.be/nS9OAFgknwE

To learn all about the NCCN Patient Guidelines to which Dr. Salopek referred, please click here: https://saveyourskin.ca/nccn-guidelines-for-skin-cancers/

For questions or more information on anything presented here please email natalie@saveyourskin.ca or reach Kathy at 1-800-460-5832

SYSF Webinar – Melanoma Treatment FAQs: Do’s, Don’ts, and How to Manage Side Effects

Recording available!

Join us to hear the latest updates on current immunotherapy and targeted therapy treatments for melanoma and non-melanoma skin cancers in Canada.

Dr. Smylie and Dr. Iafolla will hold a panel discussion on recommended dietary and lifestyle habits while on treatment, as well as managing toxicities from fever and pneumonitis to dermatologic complications from immune checkpoint inhibitors.

Presenters:

Dr. Michael Smylie, Medical Oncologist, Cross Cancer Institute, Professor, Department of Oncology, University of Alberta, Edmonton
Dr. Marco Iafolla, MD, MSc, FRCPC, Assistant Professor, University of Toronto, Medical Oncologist, Genitourinary and Cutaneous Site Lead, William Osler HS

Click HERE to view the recording!

Click on our Advent Calendar for Daily Inspiration!

December can be a difficult month for those facing challenges in their lives. Every day until Christmas, we will be posting messages of Hope to help alleviate those winter blues.

Check back every day for a new message of Inspiration

Click on each number below to view the message of the day:

Celebrating National Cancer Survivors Day with Patients Who Know: #CancerChanged

Diagnosed with advanced melanoma in August 2015, Lyall Woznesensky has learned that every minute of every day is precious, and he thanks his family and friends for their care and support through his cancer experience.

In time to celebrate National Cancer Survivors Day on Sunday, June 4, 2017, four Canadian patients living with advanced cancer are sharing their stories to help bring awareness to the hope for survivorship that is more accessible in this day and age, due to innovative new medical treatments. Through documentary-style photo essays, a new campaign called #CancerChanged will bring to life these stories, to highlight hope and survivorship through the lens of Canadian award-winning photojournalists.

#CancerChanged gives an authentic glimpse into the lives of people living longer with advanced cancer to foster hope, understanding and peer-to-peer support. This series of photographs, anecdotes, and video interviews will be shared in the coming days across social media channels, and through the networks of oncology patient organizations which are part of the collective called CONECTed.

“This is a time of change and a time of hope. Cancer patients have been dreaming about hope — and now hope is real.” said Kathy Barnard, Member of CONECTed steering committee and President and Founder of Save Your Skin Foundation, the patient advocacy group that has led the creation of CONECTed. “New advances in cancer treatment have changed the outlook for many cancer patients. This extended phase is what we call survivorship and it poses new challenges such as how patients transition from a terminal diagnosis to a redefined ‘normal’ life embracing quality time and hope.” See press release here

Lyall is open about his experience since learning that he has advanced skin cancer, “It’s all about trying to help others if I can in any small way,” he says, candidly, of his participation in #CancerChanged and bringing awareness to melanoma in general. Recently Lyall was a guest panelist on a webinar hosted by Save Your Skin Foundation: Living Beyond Cancer. Click here to watch the webinar.

To see more of Lyall’s impactful story, please see his photo essay below. To see all of the #CancerChanged stories, please visit the #CancerChanged website here. Click here for more information about CONECTEd, and to read about National Cancer Survivors day, click here.

Lyall was also interviewed for this article in the Winnipeg Sun: Former Bomber Finds Perspective in Cancer Fight

And here: “The Woz” jumps for joy after tackling cancer, Saskatoon StarPheonix.

WEBINAR: Latest news on melanoma/skin cancer/ocular melanoma from ASCO 2022