Ocular melanoma is rare, affecting approximately five in a million people. While it represents only 5% of melanomas, ocular melanoma is rapid and aggressive, accounting for 9% of melanoma deaths. Also referred to as uveal melanoma, ocular is a more inclusive term; 90% of primary ocular melanoma develops in the choroid.


There are no established risk factors for ocular melanoma, but it often occurs in blue-eyed, fair-skinned people over sixty years old. Treatment can be successful if the tumours in the eye are caught early. Around 50% of tumours will metastasize, usually in two to five years. Metastasis is to the liver in approximately 90% of these cases, but can also occur in the lungs, bones, brain or abdomen.


Click here to read one metastatic ocular melanoma survivor’s experienced perspective and direct guidance on the current landscape of options in ocular melanoma treatment in Canada:

Opening Our Eyes To Ocular Melanoma

More information about ocular melanoma can be found at these links:

Eye Disease Foundation, Quebec City, Quebec

Alberta Health Service: Uveal Melanoma Guideline

BC Cancer Agency

Canadian Cancer Society

Cure OM – CURE Ocular Melanoma (U.S.)

Ocular Melanoma Foundation (U.S)

Ocumel Ireland



Some online patient forums are discussing ocular melanoma:

Metastatic Ocular Melanoma Group – this is a closed group on Facebook, but is very active, informative, international, and worth the time for patients or their caregivers to apply to join.

Melanoma Research Foundation: Cure Ocular Melanoma Forum (U.S.)

The Eye Cancer Network (U.S.)


More links and articles of interest on the topic:

Click here to read our Survey Report, August 2018 – Save Your Skin Foundation Patient Survey: Understanding Ocular Melanoma in Canada

Ocular oncologist and research lab join forces to save patient with eye cancer –  McGill University Health Centre

Uveal Melanoma Database, Vision Health Research Network, Quebec

Abstract, 2017: Percutaneous hepatic perfusion with melphalan in uveal melanoma: A safe and effective treatment modality in an orphan disease. – Southampton

Click on these images below to view or download full-size posters:

Listed above are a few sources of information and support you might find useful. These groups are not connected to Save Your Skin Foundation. We are providing the links as useful sources of information but do not monitor content for accuracy and quality.

NOTE: The information on the Save Your Skin Foundation website is not intended to replace the medical advice of a doctor or healthcare provider. While we make every effort to ensure that the information on our site is as current as possible, please note that information and statistics are subject to change as new research and studies are published. 

Making awareness and education available is crucial. Since 2006, the Foundation has worked to raise awareness of melanoma and non-melanoma skin cancers, and ocular melanoma, focusing on the need for improved patient care.
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