Francais
info@saveyourskin.ca

basal cell carcinoma

Cancer Survivor Day 2022

The term ‘survivor’ can mean different things to different people. For some, a survivor may have completed active treatment and is free from any signs of melanoma or non-melanoma skin cancer. For others, the term may refer to anyone who has been diagnosed with melanoma skin cancer, or any type of cancer, at any point in their journey.

During treatment, just getting through each day can take all of the energy we have, making it hard to think about anything else, especially life after treatment. After treatments are over, many people experience mixed emotions of being glad it’s over, yet anxious about what the future may hold. This may be an unexpectedly challenging period of adjustment, so be sensitive to your own needs. Don’t expect to always feel good now that you’re out of treatment, and take the time you need to come to terms with what you have been through.

How can we define ‘survivorship’?

‘Survivorship’ can have many different meanings, depending on your outlook on the situation. The Canadian Cancer Society suggests a way of defining a cancer survivor as anyone who:

~ has finished and is recovering from their active cancer treatment
~ is on maintenance therapy
~ is having ongoing treatment for cancer that is stable and slow growing
~ is on active surveillance
~ is in remission or “NED” – having no evidence of disease

At wherever point you are in your cancer experience, ‘survivorship’ means simply what it means to you. If you believe that you are a survivor, take this label on and be proud of your strength!

Save Your Skin Foundation wishes to bring hope and support to all those newly diagnosed, currently undergoing treatment, or to those referred to as “NED.” We have several resources and sources of information and support listed through our website, some of which include:

Updated Canadian Statistics on Cancer Survivorship

The number of newly diagnosed cancer cases in Canada is increasing, but survival rates are also increasing, resulting in a greater need to address the unique challenges of cancer survivorship. Survival rates are increasing thanks to innovative medicines such as immunotherapy and targeted therapy treatments, many of which were first invented and tested for the treatment of melanoma skin cancer.

The 5-year survival rate for melanoma in 2015-2017 was 89%. Read our 2022 distillation of the CCS report with a focus on melanoma:  SYSF Recap Report – Canadian Cancer Society Statistics 2021

Hand in Hand, We Fight Skin Cancer Together – More Resources at these links:

Survivorship
Self-Care After Cancer 

Innovative Treatments – Taking Patients from Diagnosis to Survivorship

Decision-Support Tool For Stage III Melanoma
Customized for the Canadian audience, this pamphlet is a document to provide/discuss with patients that helps guide their decision making regarding next steps for stage III melanoma. Reviewed by Save Your Skin Foundation, updated February 2021:
Options for Stage III Melanoma ~ Making the Decision That’s Right for You

Want to learn how to use the Stage III Decision-Support Tool? Peruse frequently asked questions about Stage III melanoma and learn how to use the support tool to guide your decision making. Also developed in collaboration with Save Your Skin Foundation, updated February 2021:
Options for Stage III Melanoma: Making the Decision That’s Right for You, Companion Piece

Decision-Support Tool For Stage IV Melanoma
Newly customized for the Canadian audience, this pamphlet, created by AIM at Melanoma and reviewed by Save Your Skin Foundation in March 2022, is a document to support patients and help guide their decision making regarding next steps for stage IV melanoma:
Stage IV Melanoma Treatment Options: Making the Decision That’s Right for You
The document addresses:
– Stage IV melanoma clinical picture, biomarkers and pathology, and disease and patient factors involved in decision making
– Efficacy, safety, administration, and family-planning aspects of targeted therapies, immune checkpoint inhibitors, and other therapies used for stage IV melanoma

I’m Living Proof

When Save Your Skin Founder Kathy Barnard was diagnosed with metastatic malignant melanoma in 2003, the first thing she did was look to the internet for anything that would inspire optimism for her prognosis; hopeful news, survivors, or treatment options. She didn’t find much. Now as you can see there is a plethora of information and resources to help us though our skin cancer journey.

At any time, you can contact us at info@saveyourskin.ca, or call Kathy directly at 1-800-460-5832

You can also find other patients or survivors on our I’m Living Proof map of stars – request to connect with someone on the map, choose to share your story, or simply read through others’ experiences – you are not alone.

 

Read more

WEBINAR: Latest news on melanoma/skin cancer/ocular melanoma from ASCO 2022

(le français suit)

Don’t miss our webinar with Dr. Marcus Butler, the Medical Oncology Disease Site Lead for Melanoma/Skin Oncology at Princess Margaret Cancer Centre and Assistant Professor of Medicine at the University of Toronto. He is also the Clinical Director for the Immune Monitoring Team at the Princess Margaret where he focuses on the immunologic impact of anti-cancer immunotherapies.

This webinar reviews late breaking news, key takeaways, clinical data and other updates presented at the American Society of Clinical Oncology (ASCO) Annual Meeting taking place in Chicago, Illinois, in June 2022.

Dr. Butler shares his key insights into what the landscape of melanoma, non-melanoma skin cancers, and ocular melanoma treatment looks like for the near future in Canada.

Click HERE to view the recording

 

WEBINAIRE : Mise à jour sur le mélanome/cancer de la peau/mélanome oculaire de l’ASCO 2022

Regardez l’enregistrement du webinaire avec le Dr Marcus Butler, responsable du site d’oncologie médicale pour le mélanome et l’oncologie de la peau au Princess Margaret Cancer Centre et professeur adjoint de médecine à l’Université de Toronto. Il est également le directeur clinique de l’équipe de surveillance immunitaire du Princess Margaret, où il se concentre sur l’impact immunologique des immunothérapies anticancéreuses.

Ce webinaire a passé en revue les dernières nouvelles, les points essentiels, les données cliniques et d’autres mises à jour présentées lors de l’assemblée annuelle de l’American Society of Clinical Oncology (ASCO) qui a eu lieu à Chicago, en Illinois, en juin 2022.

Le Dr Butler a partagé ses idées clés sur ce à quoi ressemble le paysage du traitement du mélanome, des cancers de la peau autres que le mélanome et du mélanome oculaire dans un avenir proche au Canada.

Cliquez ici pour le webinaire

Read more

Check out our national and international Melanoma Awareness Month initiatives!

May is Melanoma and Skin Cancer Awareness Month

This May, Save Your Skin Foundation and Ocumel Canada are running local, national and international campaigns to raise awareness on the importance of prevention and early detection of skin cancers. See a full list of our Melanoma Skin Cancer Month and Ocular Melanoma awareness initiatives HERE.

For the third year in a row, Save your Skin Foundation’s proclamation initiative has invited Canadian municipalities to take a stance against skin cancer and educate their communities on sun safety through mayoral proclamations. Over 38 municipalities across 8 provinces have issued signed Proclamations to proclaim the month of May 2022 ‘Melanoma and Skin Cancer Awareness Month’.  Look for your city on the list here

Members of our SYSF team have also had the honour to present to the Mayors and Councils of a dozen municipalities across the country to share their experiences as patients and spread the message of sun safety and early detection of skin cancer.

Skin check awareness

Save Your Skin Foundation is part of the Global Melanoma Coalition, a group of 43 organizations from 28 different countries bringing the patient voice to the melanoma space. The below videos have been created in collaboration with the Global Coalition.

It’s funny what you can miss when you’re not looking for it. Watch the Global Coalition video and learn the importance of checking your skin for melanoma and skin cancer:

Skin self-exam tutorial

This video covers the ABCD&E warning signs of melanoma and skin cancer, and the seven steps for checking the body. Pauses between the seven steps have been included in the film, so you can simply take your phone or tablet into a bathroom, hit play, and follow the instructions in real time:

 

#EyePatchDay

Having regular eye examinations could save your life! Routine eye tests can lead to early detection of ocular melanoma and many other health issues. However, statistics show that we are not visiting the optometrist as frequently as we should.

Make a commitment to booking an eye exam this month!

Visit OcumelCanada.ca to learn more

Read more

See what we have planned for Melanoma Awareness Month 2022!

This year, Save Your Skin Foundation is running local, national and international campaigns to raise awareness on the importance of prevention and early detection of skin cancers. See a full list of our Melanoma Month initiatives HERE.

 

Press Release

Click here to read the news, April 29, 2022: Save Your Skin Foundation Runs Local, National and International Campaigns to Increase Skin Cancer Awareness During Melanoma Awareness Month

 

A common diagnosis with a rare outcome – Helen’s Story

Almost a decade ago, in 2013, Helen found a spot along her hairline that worried her. Two different doctors told her it was nothing to worry about before a dermatologist recognized it as cancerous and had it removed. And that was that, she was assured. Most skin cancers are easily dealt with and life goes on. But, based on her pathology report, Helen had a feeling that this ordeal was far from over.

It takes a village to stand up to cancer: Helen’s story via Macleans.ca

 

Sty-Lives OPHA Challenge

We have partnered with the Ontario Professional Hairstylist Association (OPHA) to create the Sty-Lives OPHA Challenge, which aims to train 200 hair professionals to detect potential skin cancers by May 31, 2022.

The initiative behind the challenge is Styling Hair & Saving Lives (Sty-Lives). Led by two medical students, with the support of SYSF, it aims to empower and educate hairstylists and barbers to detect suspicious skin lesions on the ears, face and scalp of their clients. Participating salons and barbershops are provided with training materials and resources and are taught how to detect suspicious spots. The purpose of the project is to help facilitate communication between the client and their healthcare provider, leading to earlier detection of potentially dangerous skin cancers.

As of this writing, the Sty-Lives OPHA Challenge has already reached 83% of its recruitment goal.

 

Melanoma Month Apparel

Check out our Melanoma Month Collection of Shirts perfect for the melanoma warrior or supporter in your life. As always, the proceeds from the sale of our SYSF merchandise goes directly towards supporting patients when they need it most. Visit our Etsy Store!

 

Thanks to Giving Hope Gala 2022 Sponsors & Supporters

This year’s pool party-themed gala was a lot of fun. A huge thank you to all who joined us and an even bigger thank you to all our sponsors who donated generously to make this event a success. We’ll have more information on the gala, including lots of pictures, in our next newsletter, so stay tuned!

Read more

Introducing Sty-Lives (Styling Hair and Saving Lives)

We are very pleased to be launching the Sty-Lives (Styling Hair & Saving Lives) program aimed at increasing early detection of skin cancer

The Sty-Lives program is being led by Dr. Miranda Waugh, first year Dermatology resident at the University of Ottawa, and Shannon D’Angelo, medical student at the Northern Ontario School of Medicine, with the support of Save Your Skin Foundation, and leading Dermatologists across Canada.

Through the Sty-Lives program and video, participating salons and barbershops are provided with training materials and resources, and are taught how to detect suspicious spots.

The purpose of the project is to help facilitate communication between the client and their healthcare provider, leading to earlier detection of potentially dangerous skin cancers. The goal is to help with detection, not with diagnosis. Click here to read the full press release

Help us spread the word!

All hair professionals in Canada are eligible to participate. The next time you get your hair cut, tell your hairstylist or barber about this project and invite them to visit www.saveyourskin.ca/sty-lives to learn more and to register.

Watch the video here:

 

 

Read more

Announcing the GetSkinHelp mobile app!

We want you to #StopWaiting and get your skin checked as part of #DigitalHealthWeek!

SYSF is proud to be partnering with Skinopathy for the launch of their mobile app: GetSkinHelp

The GetSkinHelp mobile app allows individuals to access the SkinAI™ technology – an embedded artificial intelligence that allows people to quickly analyze for a selection of skin diseases, including skin cancers – and schedule video appointments with a licensed Canadian doctor who can help determine next steps.

From there, the doctor might suggest an in-person appointment or simply write a prescription, which will be sent to the patient’s home or pharmacy. What is most important is that the app gets a person in front of a doctor faster than traditional means.

Watch this video to learn more:

 

Download the new free #GetSkinHelp app and have your skin concerns analyzed by their SkinAI™ technology. You can then schedule an appointment with a skin doctor and have them check it out virtually. And best of all, it is all covered by provincial health plans!

#StopWaiting and download the app now to get the medical attention YOU need:

Download the app for Apple  |  Download the app for Android

 

See a licensed doctor and heal your skin. All online. On any device.
And covered by Canadian health cards.

In the summer of 2020, Dr. Colin Hong and entrepreneur Keith Loo noticed that the medical delays caused by the pandemic had resulted in greater occurrences of late stage skin cancers being diagnosed. A few months later they created Skinopathy, a medtech company with one simple goal: find answers on how they can help solve this growing public concern.

Save Your Skin Foundation is proud to support the launch of GetSkinHelp – a new service covered by Canadian health cards that allows people to get prompt and virtual medical attention when it comes to skin diseases and skin cancers. Click here to read the press release

At Save Your Skin Foundation, we are an organization dedicated to reducing skin cancers in Canada and providing compassionate support to those living with skin cancer. And we are always on the lookout for ways that can help with that mandate, but we also acknowledge we are not the experts on advanced technology.

As part of Digital Health Week and the #StopWaiting and Get Skin Help campaign, with the folks at Skinopathy, we hosted this roundtable that will help us understand how healthcare is changing due to new technologies, and what needs to happen to keep patients safe. 

The Future of Healthcare – Just Because We Can, Doesn’t Always Mean We Should

Healthcare and technology luminaries discuss how modern technology and social trends are changing healthcare, but are they all good things and what can be done to safeguard patients?

Moderated by Dr. Jonathan Reichental, with Guests – Ashley Casovan, Pirth Singh, and Keith Loo. Click here to view the Roundtable Discussion:

 

#StopWaiting and GetSkinHelp

Download the app for Apple  |  Download the app for Android

***Moderator***

Dr. Jonathan Reichental

Dr. Reichental is the founder of the advisory, investment, and education firm, Human Future. He is also a multiple-award-winning technology and business leader whose career has spanned both the private and public sectors. Most notably, he served as the chief information officer for the City of Palo Alto in California and in 2017 was named one of the top 100 CIOs in the World.

***Guests***

Ashley Casovan

Ashley has been at the forefront of building tools and policy interventions to support the responsible use and adoption of innovative technologies, both with her work at the Government of Canada, and now as the Executive Director of the Responsible AI Institute. She was also named as one of the top 100 most influential Young People in Government by Apolitical in 2018.

Pirth Singh

Pirth is a government maverick and trailblazer who has helped the government of Canada embrace open source technologies. He is now the Assistant Director General for the Industry Canada Innovation, Science and Economic Development team where he is leading the work on the development and implementation of digital credentials.

Keith Loo

Keith is the CEO and Co-Founder of Skinopathy, a Canadian medical technology startup that is revolutionizing the patient circle-of-care. He is heavily involved in the Canadian tech start-up community, consults out of several incubators and accelerators in the Greater Toronto Area, and is an entrepreneurship instructor at the Schulich School of Business.

 

Read more

New! NCCN Guide for Patients – Basal Cell Skin Cancer

Save Your Skin Foundation is pleased to endorse and announce the release of the new Guidelines for Patients booklet on Basal Cell Carcinoma (BCC, or Basal Cell Skin Cancer) from the National Comprehensive Cancer Network® (NCCN®).

This informative pdf-downloadable or print version booklet will help patients understand their BCC diagnosis and support them through their surgical and treatment options journey. BCC primarily impacts lighter-skinned, sun-exposed people over age 60, due to the buildup of sun exposure over the years. However, skin cancer has recently become more common in younger people, likely as a result of them spending more time in the sun. In very rare instances untreated BCC can progress significantly and be life-threatening. This new resource provides trustworthy information based on the latest evidence, and is available online at NCCN.org/patientguidelines

NCCN® guidelines are easy to read, free, well illustrated, valuable resources for patients and caregivers, available as online e-booklets, download-able PDF files, or on the “NCCN Guides for Cancer” app for iPhone or Android devices and tablets.  Though these guidelines are developed with best practices in use in the United States, the resources do apply to patients and clinicians in Canada (where treatment options and accessibility apply), as confirmed with members of the Save Your Skin Foundation Medical Advisory Board.  Canadian doctors do refer to the NCCN® clinical guidelines, and they do support the distribution of NCCN® patient guidelines to Canadian patients.

 

To view the full collection of National Comprehensive Cancer Network® Guidelines for Patients on melanoma and non-melanoma skin cancers and related treatments and resources, please view our page here:

NCCN Guidelines for Skin Cancers

 

And for more information about Basal Cell Carcinoma, including our 2020 webinar on the topic, please visit our page here:

About Basal Cell Carcinoma

 

The Patient books are available for free to view and print at NCCN.org/patients or via the NCCN Patient Guides for Cancer App: Virtual Library of NCCN Guidelines® App – Available for iPhone/iPad and Android Smartphone/Tablet

The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of 28 leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers around the world.

Read more

Calling All Non-Melanoma Skin Cancer Patients – Survey 2021

We invite all non-melanoma skin cancer patients having had surgical procedure(s) and/or systemic treatment to take this 10-minute anonymous survey to share their feedback:

The Patient Experience: Surgical and Systemic Treatment of Advanced Basal Cell Carcinoma and Squamous Cell Carcinoma Skin Cancers

Information gathered from this survey will be part of Save Your Skin Foundation’s recommendations to the CADTH Common Drug Review (CDR) and the pan-Canadian Oncology Drug Review (pCODR), and will help us better understand discussions that skin cancer patients have with their surgeons along the treatment continuum.

This survey is now closed.  Thanks to All for their feedback and support.

Stay tuned for the resulting report. 

Read more

SYSF Webinar: Post-ASCO 2021 Update

Post-ASCO 2021 Update with Dr. Hamid: Melanoma, Non-Melanoma Skin Cancers, and Ocular Melanoma

Presented by Dr. Omid Hamid, The Angeles Clinic and Research Institute, Los Angeles, California, this webinar  reviews late breaking news, key takeaways, clinical data and other updates presented at the American Society of Clinical Oncology (ASCO) Annual Meeting that took place in a virtual format in June 2021.

Dr. Hamid shares his key insights into what the landscape of melanoma, non-melanoma skin cancers, and ocular melanoma treatment looks like for the near future.  As Director of the Melanoma Center at The Angeles Clinic and Research Institute, Dr. Omid Hamid works to ensure that patients receive access to the most up-to-date therapeutics, based on molecular pathways of melanoma progression. Dr. Hamid is recognized as one of the preeminent Immuno-Oncologists and melanoma specialists in the world.

Click HERE to view the Presentation Recording on our youTube channel

Read more

SYSF Webinar: Skin Cancer A-Z

Webinar Recording Available: “Melanoma and Non-Melanoma Skin Cancers From A-Z” with Dermatologist Thomas G. Salopek, MD FRCPC, Professor, Department of Medicine, Division of Dermatology, University of Alberta.

This webinar helps educate the general public about the dangers of UV exposure, and it also addresses what options patients and their families have if they are diagnosed with any form of skin cancer. Learn about skin cancer statistics in Canada, sun protection and safety, and details on treatment for primary and metastatic basal cell carcinoma, squamous cell carcinoma, merkel cell carcinoma, and melanoma and melanoma sub-types. For more detailed information on immunotherapy and targeted therapy for each of these please view our webinars on each, at https://saveyourskin.ca/webinars-video-resources/

This webinar presentation is in collaboration with Save Your Skin Foundation, La Roche-Posay, the Quebec Cancer Foundation, and the Alberta Society of Melanoma.

To view the presentation recording, click here: https://youtu.be/Ae_QXVAk_lY

To view the French recording please click here: https://youtu.be/Yoh38INeDgo

To learn more about treatment options for melanoma, please click here to see another of our past webinars detailing immunotherapy and targeted therapy:  https://youtu.be/nS9OAFgknwE

To learn all about the NCCN Patient Guidelines to which Dr. Salopek referred, please click here: https://saveyourskin.ca/nccn-guidelines-for-skin-cancers/

For questions or more information on anything presented here please email natalie@saveyourskin.ca or reach Kathy at 1-800-460-5832

 

Read more