SYSF is pleased to announce that it has endorsed an important new initiative, aimed at advocating for the personal health data rights of Canadians. Developed by a patient and caregiver-led Data Working Group formed in 2019 from the annual Patients Redefining the Future of Healthcare in Canada Summit, the Declaration of Personal Health Data Rights in Canada is intended to create greater consensus on the fundamental principles associated with personal health data, particularly from the perspective of patient and citizen groups; in order to encourage the health ecosystem to work out how to achieve these principles efficiently and effectively in partnership with industry, policy-makers, other data custodians, and patients.
The Declaration is available in two formats. To read or download the full Declaration, click here. To read the Executive Summary of the Declaration, click here. To read the full story including visuals and these links, please CLICK HERE.
Save Your Skin Foundation and Canadian Psoriasis Network are pleased to announce the launch of the 6th Annual Patients Redefining the Future of Health Care in Canada Summit & Webinar Series!
Pre-Summit Webinar Series:
June 29, 2021: Social Determinants of Health: Key Concepts and Practical Considerations
September 29, 2021 – Register here: Indigenous Social Determinants of Health: Impacts of COVID-19
October 2021: Governments’ Responsibilities in Health, including Determinants of Health
October 2021: Where We’ve Been & Where We’re Headed: Patients Redefining the Future of Health Care in Canada Summit
6th Annual Summit – Week of November 15, 2021:
Patients Redefining the Future of Health Care in Canada: COVID-19’s Echo Pandemics—the Way Forward
As always, there are no costs for any of our events. Details & registration coming soon! #PatientsRedefiningHealthcare
The 5th annual Patients Redefining the Future of Health Care in Canada Summit was held virtually on November 30, 2020 and December 3, 8 and 10, 2020. The Summit is an initiative led by Save Your Skin Foundation in collaboration with the Canadian Psoriasis Network and Queen’s University Office of Indigenous Initiatives. The December 8th value-based health care panel was co-hosted with the Conference Board of Canada. The Summit also received generous contributions from volunteers, speakers, panelists, facilitators, and other collaborators.
Please see below for individual Summit presentation recordings, or click HERE to see the full list on our youTube channel.
Click here to read the full 2020 Summit Report: 5th Annual Patients Redefining the Future of Health Care in Canada Summit, 2020 Summary Report
Et en francais: Le cinquième Sommet annuel : Les patients redéfinissent l’avenir des soins de santé au Canada, Rapport Sommaire 2020
Ongoing barriers and systemic issues experienced by patients in Canada have become starkly clear in light of the COVID-19 pandemic. This virtual Summit shared information on the state of health and health care for different populations and how COVID-19 has impacted population health as well as specific policy issues facing Indigenous communities, older adults, populations living with mental health issues, and people experiencing income insecurity.
In addition, the Summit updated attendees on the progress of value-based health care (VBHC) projects in Canada. The Summit continued to focus on shifting toward a value-based approach to health care in Canada that improves value to patients, particularly as we move toward ongoing mitigation and eventual recovery from the pandemic.
Patients Redefining the Future of Health Care in Canada 5th Annual Summit
Monday, November 30, 2020
Monday, November 30, 2020 – Keynote Speakers
Thursday, December 3, 2020 – Key Population Panels
Mental Health Panel – Dr. Brenda Restoule, CEO, First Peoples Wellness Circle, Ellen Cohen, National Coordinator, National Network for Mental Health, and Mary Alberti, CEO, Institute for Advancements in Mental Health presenting.
Older Adults Panel – Jane Meadus, Staff Lawyer, Advocacy Centre for the Elderly, Edith Mercieca, Director of Home and Community Support Services, Maamwesying North Shore Community Health Services Inc., and Laura Tamblyn Watts, CEO, CanAge presenting.
Income Security Panel – Angela Robertson, Executive Director of Queen West – Central Toronto Community Health Centre and Tracy Smith-Carrier, Associate Professor, School of Social Work, King’s University College at Western University presenting.
Tuesday, December 8, 2020 – Value-Based Health Care (VBHC): Health Care Solutions for Canada
With Opening Remarks by Margaret Peters, Founder, Unmasking Psoriasis, and Jennifer Graham, Vice President, Canadian Congenital Heart Alliance
Scott Wolfe, Canadian Association of Community Health Centres
Eva Villalba, Executive Director, Coalition Priorité Cancer au Québec
Shaneel Pathak, Co-Founder & CEO, ZoeInsights
Opportunities for the Growth of VBHC across Canada – Multi-stakeholder moderated panel conversation exploring opportunities to increase readiness and grow VBHC across Canada, moderated by VBHC Canada.
Monika Slovinec D’Angelo, Health Director, Conference Board of Canada, Moderator. And Panelists:
Paul L’Archevêque, Innovation Director, Ministere de la Sante et des Services sociaux
Rodney Burns, Chief Information Officer, Alliance for Healthier Communities
Maria Santos, First Nations Information Governance Centre
Kristine Neglia, First Nations Information Governance Centre
Watch this Pre-Summit webinar: Patients Redefining the Future of Health Care in Canada Summit, The Starting Line
Introduced and facilitated by Louise Binder, Health Policy Consultant, this webinar reviews concepts presented at the 2019 Summit, A Dose of Reality: Patients Redefining the Future of Health Care in Canada. Presentations includes recordings of Jennifer Clawson, Health Systems and Value-Based Health, Boston Consulting Group, and Dr. Ambreen Sayani, Health Strategist and Consultant, St. Michael’s Hospital, Toronto.
Additional Videos – Resources of Interest:
Homeward Bound, De dwa da dehs nye>s Aboriginal Health Centre, Transformative Change Award Winner
Social Prescribing, Centre de santé communautaire de Témiskaming, Transformative Change Award Winner
On November 12-13, 2019, Save Your Skin Foundation, Canadian Psoriasis Network, and Schizophrenia Society of Ontario co-hosted the 4th Annual Summit, A Dose of Reality: Patients Redefining the Future of Health Care in Canada. The 2019 Summit builds on the three previous Summits which provided an unprecedented opportunity for patients, caregivers and patient representatives from diverse disease and disability groups to come together to discuss a shared vision for health care in Canada.
Click here to read the 2019 Summit Reports:
View playlist of presentation recordings from the 2019 Summit: A Dose of Reality: Patients Redefining the Future of Health Care in Canada
Or select from the list below to view individual presentation recordings:
Panel 1: Updates on Health Care in Canada
Megan Bettle, Director, Centre for Regulatory Excellence, Statistics & Trials (CREST), Biologics & Genetic Therapies Directorate, Health Products & Food Branch, Health Canada
Wayne Critchley, Senior Associate, Global Public Affairs
Eric Sutherland, Executive Director, Data Governance and Strategy, Canadian Institute for Health Information (CIHI)
Robin Martin – Greetings on behalf of the government from Ontario’s Deputy Premier and Minister of Health, Hon. Christine Elliott
Sharon Clarke, Program Lead, Indigenous Health, CIHI
Panel 2: Updates on Health Care in Canada (cont’d)
Sarah Berglas, Manager, Patient Engagement, Canadian Agency for Drugs & Technologies in Health (CADTH)
Marie-Claude Aubin, Coordonnatrice scientifique en pharmacoéconomie, Direction du médicament Institut national d’excellence en santé et en services sociaux (INESSS)
Jennifer Clawson, Partner & Associate Director, Health Systems and Value-Based Health, Boston Consulting Group
Karen Voin, Vice President Group Benefits and Anti Fraud, Canadian Life and Health Insurance Association Inc (CLHIA)
The Determinants of Access to Care
Dr. Ambreen Sayani, Health Strategist and Consultant; Coordinator Lung Cancer Screening Study, St. Michael’s Hospital, Toronto
Focus on Value-Based Health Care in Canada
Jennifer Rayner, Director, Research & Evaluation, Alliance for Healthier Communities
Monika Slovinec D’Angelo, Ph.D., Director of Health, Conference Board of Canada
Eva Villalba, Executive Director, Coalition Priorité Cancer au Québec
Stacie Myers, Manager of Outcomes Research & Development, International Consortium for Health Outcomes Measurement (iCHOM)
Day 2 – Welcome Back
For more information please contact email@example.com
Please CLICK HERE to see reports, videos, and details from 2016, 2017, and 2018 Summits
Making awareness and education available is crucial. Since 2006, the Foundation has worked to raise awareness of melanoma and non-melanoma skin cancers focusing on education, prevention and the need for improved patient care.