Thank you so much to all who attended the FIRST Canadian Ocular Melanoma Patient & Caregiver Symposium!

If you weren’t able to join us live over the weekend, you can watch the recording of the symposium on our Youtube channel.

Date: 
April 15 & 16, 2023

Start Time:
Day 1 – Starts: 12pm EST | 9am PST | 10am MST | 1:30pm NST | 1pm AST

The Symposium is brought to you by Ocumel Canada & will consist of 4 key presenters. This symposium will go over 7 virtual sessions over 2 days and will provide up-todate information on primary and metastatic disease, treatment options, testing, and the psychosocial experience of patients. Patients living with primary and metastatic ocular melanoma will also share their experiences.

Can’t attend that weekend? Register anyway and the recordings will be sent to you as soon as they are available.

Our Key Presenters:

  • Dr. Marcus Butler, Medical Oncologist, Princess Margaret Cancer Centre
  • Dr. Hatem Krema, Director, Ocular Oncology, Princess Margaret Cancer Centre/UHN
  • Dr. Ezekiel Weis, Provincial Medical Lead, Alberta Ocular Brachytherapy Program
  • Monica Tan, Social Worker, Telus Health/ Private Practice

PROGRAM & ADDITIONAL INFORMATION

Program

Start: 12pm EST | 9am PST | 10am MST | 1:30pm NST | 1pm AST

  • Welcome – Nigel Deacon and Kathy Barnard (15 min)
  • Session 1 – Patient Story – Sherry Agriesti (20 min)
  • Session 2 – Presentation: Primary disease – Dr. Weis (45 min)
  • Break (5 min)
  • Session 3 – Patient Story – Mark Jennings (20 min)
    Dr. Krema – Presentation on the value of testing for patients and physicians in making treatment decisions (45 min) followed by a 15 min Q&A
    Castle (Dr. Alsina) and Impact Genetics (Jamie Jessens) –  Presentation on testing (value and availability) and discussion around testing tools – (30 min)

End: 3pm EST | 12pm PST | 1pm MST | 4:30pm NST | 4pm AST

DAY 2

Start: 12pm EST | 9am PST | 10am MST | 1:30pm NST | 1pm AST

  • Welcome – Nigel Deacon and Kathy Barnard (5 min)
  • Session 1 – Patient Story – Candyce Charles (20 min)
  • Session 2 – Presentation on metastatic disease – Dr. Butler (45 min)
  • Break (5 min)
  • Session 3 – Presentation: Psychosocial Experience of the Patient (30 min) followed by a question period (20 mins)
  • Session 4 – Discussion: What Patients and Caregivers Need from Ocumel Canada Moving Forward – What Needs are Not Being Addressed – Nigel Deacon and Kathy Barnard (30 min)
  • Closing – Nigel Deacon and Kathy Barnard (5 min)

End: 3pm EST | 12pm PST | 1pm MST | 4:30pm NST | 4pm AST

Ocumel Canada, an initiative of Save Your Skin Foundation, was formed to increase awareness, advance treatment options, and build a supportive community for those diagnosed with primary and/or metastatic ocular melanoma (OM). Ocumel Canada is in close collaboration with a global Medical Advisory Board and partner patient representation organizations with the endeavour to build on international best practices to improve patient outcomes for Canadians touched by this disease.

This rare cancer is a challenge in so many ways. The small number of diagnoses in Canada does make it difficult for the mainstream Cancer Agencies to provide adequate services. In some provinces and territories, there are no services at all.

Click here to learn more