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Ocumel Canada

Move for Melanoma 2020 – It’s a Wrap!

 

To everyone who participated in Move for Melanoma 2020 by raising awareness and funds in their communities, a huge thank you! We couldn’t have done it without you!


Over 100 participants
and 24 teams across Canada took part in Move for Melanoma this year! We have been so moved and inspired by this incredible community of patients, families, and friends.

We’d like to thank all those who supported Move for Melanoma by making a donation, sponsoring an event or spreading the word. Thanks to you, the event was a monumental success!
We reached 120% of our (doubled) fundraising goal! You can read our full post-event press release HERE.

To all participants and donors, your dedication to the fight against skin cancer will help Save Your Skin Foundation continue to support Canadians living with non-melanoma skin cancer, melanoma and ocular melanoma when they need it most. Every single dollar raised through your donations will go directly to patients in the form of cab fares, treatment costs, flights, accommodation and other necessary but costly expenses incurred while receiving treatment.

Thanks to all our participants who sent us pictures of themselves and their teammates taking part in Move for Melanoma, we were able to create a beautiful Wrap video of the event. We encourage you to take 2 minutes to complete our post-event PARTICIPANT SURVEY to help us improve for next year!

 

Watch our 2020 Wrap video!

 

 

Thank you to our Sponsors:

 

We’d like to acknowledge the many businesses that have stepped up to support our event this year. They have generously donated prizes for our top fundraisers and made monetary contributions to the event.
Please show them your support!

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#EyeGetDilated – Awareness Campaign for Ocular Melanoma – November 2019

The 4th annual #EyeGetDilated campaign kicks off November 1st!

Throughout the month, CURE OM, an initiative of Melanoma Research Foundation in the United States, will be utilizing social media, guest blogs, videos and more to promote and educate about the importance of eye health and encourage everyone to include a dilated eye exam in their annual wellness routine.

Early detection is incredibly important for many eye diseases, including ocular melanoma.

To expand their reach internationally, CureOM has invited Ocumel Canada to partner with them for this year’s awareness campaign! If you’d like to participate, please re-post information from the CURE OM and MRF, and Ocumel Canada, social media channels during the month to spread the news about the importance of dilated eye exams, and share your own messages too! You can also request our free “Missing a Check?” postcards to take to your local doctors to include in their annual wellness reminders or click here to download a PDF copy. Suggested places to hand out postcards/flyers (with permission) include your primary care/family physician, optometrist and dermatologist. Email us to find out more!

To read more about the role of a Dilated Eye Exam in early detection of Ocular Melanoma, please click here to read this blog by Carol L. Shields, MD:

Get your eyes dilated once a year for life. Detection of melanoma when it is small is important as life prognosis is far better. It should be known that about 10% of Caucasians in the United States have a choroidal nevus and this could be a precursor to melanoma. Any patient who has different colored iris should be checked twice yearly, as this too could be a precursor to melanoma. If there is a family history of other cancers like renal cell carcinoma, mesothelioma, or others, you should have your eyes checked as uveal melanoma can occur also with these other malignancies under the umbrella syndrome called BAP 1 cancer predisposition syndrome.  Click here to read the full article.

And click here to read more about Ocumel Canada and resources we offer across Canada: About Ocumel Canada

 

 

 

 

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Huge Thank You to all Move for Melanoma supporters!

To all those who participated in Move for Melanoma by raising awareness and funds in their communities, a huge thank you! We couldn’t have done it without you! We are inspired by all of the creative activities that SYSF supporters did in the Move for Melanoma activity challenge throughout the weekend of September 13-16, 2019.

We’d also like to thank all those who supported Move for Melanoma by making a donation, sponsoring an event or spreading the word. Thanks to you, the event was a monumental success! Your dedication to the fight against skin cancer will help Save Your Skin Foundation continue to support Canadians living with non-melanoma skin cancer, melanoma and ocular melanoma. Know that you have made a difference!

Thank you to our Sponsors:
Bristol-Myers Squibb Canada  |  Beach City Crossfit  |  HollisWealth  |  Madlab School of Fitness  |  AXED Throwing Club  |  Lululemon  |  Code Sports

 

TOTAL FUNDS RAISED THIS WEEKEND
Want to know how it went? Watch this video to find out!

Thanks to the many participants who sent us pictures of themselves and their teammates taking part in Move for Melanoma, we were able to create a beautiful recap video of the event. The BMS Cycling Team completed a 600 kilometre ride over the weekend – watch SYSF Founder Kathy Barnard roll across the finish line with them!

 

 

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One Week Until Move for Melanoma!

All across Canada teams of runners, bikers, hikers, and even laser tag enthusiasts are all preparing to MOVE FOR MELANOMA next weekend!

In our weekend-long fund-and-awareness-raising activity challenge Save Your Skin supporters will be all hands on deck to make this event great.

Friday September 13 kicks off Move for Melanoma with a team of cyclists biking 600 kilometres in the Montreal area, wrapping up the ride on Monday September 16 in conjunction with two shorter rides, 85 kms and 55 kms, in which our very own Kathy Barnard will be biking with her husband alongside the BMS team.

On the Saturday and Sunday in cities all over, participants will do their favourite activities in the name of melanoma patient support – in addition to the run and bike routes people have planned, we have crossfit teams, kayaking, city tour walking, and axe-throwing!

Haven’t yet registered? 

CLICK HERE to view the event website and join a team, create a team, or donate today!

Click on any image below to see what these teams are doing:

             

             

 

Save Your Skin Foundation notes the unique accessibility of the Challenge as an important part of campaign. “Skin cancer can happen to anyone. It’s caused by exposure to ultraviolet (UV) rays from sunlight or tanning beds. We therefore wanted a campaign that was accessible to anyone”, explains Kathleen Barnard, President and Founder, Save Your Skin Foundation and stage four melanoma survivor. “People have come up with very creative ideas that work within their Challenge comfort zones. One team is doing CrossFit, another is doing an axe-throwing contest and I’ll be cycling 55 kilometres in Montreal on Monday!”

Email us to let us know what you’re doing for MOVE FOR MELANOMA! 

Stay tuned for more photos and excitement from the events next weekend.  We will also post thanks to our generous sponsors, including:

Bristol-Meyers Squibb Canada, Montreal, Quebec

AXED Throwing Club, Thornbury, Ontario

Beach City CrossFit, Penticton, BC

MadLab School of Fitness, Vancouver, BC

And many more!

 

 

 

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Introducing Think Uveal Melanoma, by Immunocore

We are happy to share with you the launch of chapter 1 of a new Uveal Melanoma Disease Education Campaign website by Immunocore, thinkuvealmelanoma.com. (Note: Please use Google Chrome for the best user experience). We are pleased to endorse this website and to share it with our Medical Advisory Board and membership.

This initiative is an important milestone in educating and increasing the knowledge of ocular and uveal melanoma (UM) and its unique requirements, for healthcare professionals. This includes increasing the knowledge surrounding the diagnosis, referral, monitoring and treatment of UM, across the full spectrum of key stakeholders, such as Ophthalmologists, Ocular Oncologists, Retina Specialists, Medical Oncologists, in both community and academic centers.

This global campaign consists of three chapters that will be launched over the course of this year. Chapters 2 and 3 will educate healthcare professionals about the differences between uveal and cutaneous melanoma and the limitations of current treatment options. Global experts in the field of UM are partnering with Immunocore to create meaningful and relevant content. A multi-channel engagement campaign is surrounding the website to reach a broad range of key stakeholders and allowing for multiple virtual touchpoints.

Ultimately, Immunocore wants to

  • raise awareness of the unmet need in UM
  • educate physicians and other key stakeholders on metastatic UM (mUM) and the differences to metastatic cutaneous melanoma (mCM)
  • convey their commitment to exploring ways to address the distinct unmet needs of patients with UM

 

Click here to view the website, background information, and even an interactive module which simulates possible symptoms of UM: thinkuvealmelanoma.com

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SYSF Webinar: Ocular Melanoma

Ocular Melanoma – Innovative Treatments and Beyond

With Presenters:

Dr. Marcus Butler, Princess Margaret Cancer Centre, Toronto, Ontario, Canada

Dr. Omid Hamid, The Angeles Clinic and Research Institute, Los Angeles, California

Nigel Deacon, Ocular Melanoma Survivor/Patient, British Columbia, Canada

This webinar provides an update on the landscape of metastatic ocular melanoma treatment in Canada and the United States. Dr. Hamid and Dr. Butler share their knowledge of current practices and care pathways, identifying the most pressing needs for patients. They also discuss innovative treatment options such as IMCgp100, as well as clinical trials available to Canadian patients with ocular or uveal melanoma. Nigel Deacon shares his experience with this rare cancer; Kathy Barnard facilitating.

Missed the webinar? Listen to a recording of the presentation here, or watch it on our YouTube channel here.

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Introducing: Ocumel Canada

For the past year, Save Your Skin Foundation has been working with ocular melanoma (OM) survivor and advocate Nigel Deacon, to improve OM patient care across the country. Together we created a survey and resulting report in order to gain insight into the Canadian OM patient journey, and we have connected with innovative OM treatment researchers as well as explored testing options in Canada for ocular melanoma, also known as uveal melanoma. Additionally, we have partnered with OM patient support groups around the world, such as Cure OM (an initiative of the Melanoma Research Foundation, United States), and Ocumel Ireland and Ocumel UK.

We are inspired by the work being done by these groups, and by the feedback we receive from patients who need better support in their diagnoses of primary and/or metastatic ocular melanoma, to work toward better and more standardized care in all provinces in Canada. We have identified gaps in OM patient care which can vary from centre to centre, and we recognize the need to advocate for patients to receive treatment for their disease, especially when it is metastatic.

In order to continue this work and raise awareness for this rare disease and the patients who need support to handle it, we have created a dedicated initiative called Ocumel Canada, which will serve as our platform for increasing education and community around the topic.

Ocumel Canada strives to do the following:

  • Advocate for early detection of ocular melanoma
  • Enable access to early treatment of primary ocular melanoma
  • Work towards a consistent approach to treatment of metastatic ocular melanoma
  • Support patients who have been diagnosed with primary or metastatic ocular melanoma
  • Build a network of support for patients and caregivers

 

Ocumel Canada will work with health care providers and HTA decision-makers across Canada to improve ocular melanoma patient outcomes. We applaud the work being done at the two busiest centres for referrals, and we wish to help extend treatment options to patients in remote areas and to provinces who do not currently participate in the same practices available to OM patients in areas such as Toronto, Ontario. Advocacy for increased patient access to clinical trials, even if in other countries, is also an aim for Ocumel Canada.

Today we begin with a new hope for Canadians diagnosed with ocular melanoma.

Click here to read the press release: Launch of OCUMEL CANADA Offers New Hope for Canadians Diagnosed with Rare Ocular Melanoma

Stay tuned for updates on our progress!  And tune in Friday February 15, 2019 to our webinar Ocular Melanoma: Innovative Treatments and Beyond, with Dr. Butler of Princess Margaret Cancer Centre, and Dr. Hamid from The Angeles Clinic and Research Institute, in Los Angeles, California, U.S. This webinar will provide an update on the landscape of metastatic ocular melanoma treatment in Canada and the United States. Dr. Hamid and Dr. Butler will share their knowledge of current practices and care pathways, identifying the most pressing needs for patients.  They will also discuss innovative treatment options such as IMCgp100, as well as clinical trials available to Canadian patients with ocular or uveal melanoma. Nigel Deacon will share his experience with this rare cancer; Kathy Barnard will facilitate the discussion.

For more information about ocular melanoma and the Ocumel Canada initiative, please feel free to explore the information we have put together for our website at www.ocumelcanada.ca , email ocumelcanada@saveyourskin.ca, or call us at 1-800-460-5832. 

We have created the following pages to provide up-to-date links and resources:

Ocumel Canada – About Ocular Melanoma

Ocumel Canada – Helpful Links

Ocumel Canada – Resources and Support

Ocumel Canada – 2018/2019 Strategic Plan

https://www.instagram.com/p/BsqaD2xgyf6/

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