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melanoma survivor

Hockey Fights Cancer Focuses on Save Your Skin Foundation This Year

Save Your Skin Foundation has been chosen to receive special focus during the Vancouver Canucks’s Hockey Fights Cancer Night!

 

This year’s Hockey Fights Cancer game will have a special focus and holds important meaning to a member of the Canucks family. In 2020, Natalie Miller’s mother, Janet, passed away from metastatic melanoma. Since her diagnosis, J.T. and Natalie have supported Save Your Skin Foundation. The Vancouver Canucks announced this morning that a $20,000 donation will be made to Save Your Skin Foundation on behalf of the Canucks for Kids Fund.

 

If you’d like to join us on Sat, Dec. 3rd at Rogers Arena, you can purchase your tickets using the following link and SYSF will get $10 from every ticket sold: https://offer.fevo.com/arizona-coyotes-ebylfkn-46c643. We will have a booth in section 111 so if you come to the game, make sure to come say hi! A video featuring SYSF founder Kathy Barnard will play during the game and our booth will be features as well.

 

On top of all this, the purple jerseys worn by the players during their warm-up session will be auctioned off with proceeds coming to SYSF. We are truly honoured by the generosity shown by the Vancouver Canucks and the J.T. Miller family, and by this wonderful opportunity to bring greater awareness to melanoma.

 

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Webinar – Living with Cancer: Survivorship & Mental Wellness

Date/Time:  November 23, 2022 – 5pm-6:30 pm PT / 8pm-9:30 pm ET

This webinar will focus on the experience of cancer survivors and the importance of mental wellness from the perspective of four women with unique backgrounds and experiences in the cancer space. Shannon Gaudette, a melanoma stage 4 survivor, will talk about her physical and emotional wellbeing throughout her cancer experience. She will be followed by Antonella Scali, Executive Director of the Canadian Psoriasis Network and the daughter of a cancer survivor, who will talk about the results of a survey completed by All.Can Canada and implications for mental health and the need for psychosocial supports. Then, Kathy Barnard, president of the Save Your Skin Foundation and a melanoma stage 4 survivor, will talk about her experience as a long-time survivor. Finally, Lyanne Westie, SYSF wellness support consultant, will present on the importance of mental wellness in all aspects of life. These short presentations will be followed by a discussion between the four presenters, with time for questions from webinar attendees.

Watch the recording here

Presenters:

  • Kathy Barnard, President, SYSF, melanoma stage 4 survivor
  • Antonella Scali, MSW RSW, Executive Director, Canadian Psoriasis Network
  • Shannon Gaudette, melanoma stage 4 survivor
  • Lyanne Westie, SYSF wellness support consultant
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Move for Melanoma 2022 – It’s a Wrap

A tremendous THANK YOU to all of our incredibly dedicated participants and generous donors!

74 participants and 20 teams across Canada took part in Move for Melanoma this year! We have been so moved and inspired by this incredible community of patients, families, and friends.

After the success of last year, we once again set ourselves an ambitious goal of raising $75,000. With your help, we ended up surpassing our goal once again this year!


To wrap up this monumental weekend, we’ve created the Recap Video below. We hope you will take a few moments to watch it as we pay tribute to our incredible participants, donors and sponsors across Canada.


We’d also like to highlight the three fundraising teams that raised the most this year.

Team Ocumel Canada

Based in Victoria, BC, Team Captain Nigel Deacon ran a marathon distance to inspire others to donate to this worthy cause. Together with his fellow team members Martin Dawes and Linda Sendall, they raised an incredible $11,760 for ocular melanoma patients.

Check out his team page here.

 


Team Ani’s Keepers

Based in Chilliwack, BC, Ani Davidson and her sisters challenged themselves to complete a combined 10,000 minutes of fitness between them in the month of September – and they crushed that goal, completing 11,820 minutes! Ani is currently undergoing treatment for melanoma.

Check out her team page here.


Team Mela-No-More – In Honour of Laura

Based in Vancouver, BC, Team Mela-No-More raised funds in honour of Laura, whom they lost after a long and courageous fight. Laura was a beautiful and strong woman, wife and mother. The team raised almost $5,370

Check out their team page here.


Finally, we’d like to acknowledge the many businesses that stepped up to support our event this year. Please show them your support!

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Move for Melanoma 2022

Move for Melanoma is an activity challenge that takes place across Canada. The goal of the event is to bring awareness to melanoma, non-melanoma skin cancer and ocular melanoma, while raising funds to support patients affected with these diseases when they need it most.

This year, the event will take place on September 23-25th, 2022. As always, participants will be able to choose a physical challenge of their choice to complete on the weekend of the event. Participants will form teams and, together with their friends and family, try to reach their personal fundraising goals.

To facilitate the whole thing, again this year, we will be using a custom website that allows people to register, donate, solicit donations, track progress and promote the event all in one place. The website also includes many resources for participants to help them get ready, and a Q&A page for more information.

If you’re interested in joining us, please visit Move for Melanoma 2022 and register now.

 

Save Your Skin Foundation is the only organization in Canada that supports skin cancer patients financially when they need it most. All the money raised through your donations goes directly to patients in the form of cab fares, treatment costs, flights, accommodation and other necessary but costly expenses incurred while receiving treatment.

Whether you’re a survivor who wants to bring hope to newly diagnosed patients, the family member or friend of a patient who wants to send a powerful message of solidarity, or a patient who wants to help change the face of cancer for ever, we invite you to take a stand against melanoma and to move with us this September!

Hand in hand, we fight melanoma together!

          

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Move for Melanoma After Party

Join the funnest part of MOVE FOR MELANOMA this year by joining our VIRTUAL AFTER PARTY! Celebrate with the Save Your Skin team, donors and fellow participants! Everyone is welcome!

The After Party will take place on Sunday, September 26th, 2021 at 5pm PT | 8pm ET on a platform called Topia. If you attended our virtual Giving Hope Gala in the spring, then you will know that Topia is a fun, new, online chat platform that allows us to connect virtually in a more human way. You’ll easily be able to move in and out of conversations with other attendees like you would in person with the platform’s spatial video, while also exploring a world full of surprises.

In the meantime, click here to share, participate in, and stay up to date on the progress of our 3rd annual Move for Melanoma event!

 

 

 

 

 

 

 

 

 

What you’ll need:

  • A computer or a tablet – You’ll need a Windows or Mac desktop or laptop computer equipped with a camera, or a Android Tablet or Ipad. For the best experience on Android tablets please use “desktop mode” in Chrome. 
  • A supported web browser – Topia works best on Google Chrome, Edge, and Brave on desktop and laptop computers. For best results we recommend using one of these three browsers.
  • Headphones – There is ambient sound in Topia which is personal to you. Headphones ensure a great experience. Without headphones, higher volume can result in feedback for other guests or mixed sounds which isn’t fun for anyone.

 

How to join:

  • On September 26th at 5pm PT | 8pm ET, click on this link to join: https://topia.io/save-your-skin-foundation. Don’t bother trying to go on beforehand as it will not be available.
  • When you first go in, you will be asked to choose a display name.
  • Your browser will ask for permission to use your camera and audio. If you have Zoom/Teams/Skype open you won’t be able to do this, so please make sure they’re closed first.

 

What to do once you’re in:

  • You can move around the space using either mouse clicks or your arrow cursor buttons.
  • You hear and see people better the closer you are to their little “Topi,” or person.
  • If you walk away from people you hear and see them less. People “fade out” as they get farther away.
  • As you explore, notice when your cursor turns into a pointer. This indicates that the object your mouse is on has a function. Click to interact with the object. 
  • You can mute yourself or others by clicking the speaker icon in the top right corner of your video or theirs. When muted the speaker will turn from black to red.
  • To send a private message to someone at the gala, click on the envelope symbol on their video. If someone sends you a private message, the envelope symbol to the left of your screen will become red. 

 

For complete instructions on how to use Topia and join the party, click here!

 

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Move for Melanoma 2021

Move for Melanoma is back!

This year, we’ll be joined by Vancouver Canucks’ JT Miller and his wife Natalie to raise funds for melanoma skin cancer. 

Move for Melanoma is an activity challenge that takes place across Canada. The goal of the event is to bring awareness to melanoma, non-melanoma skin cancer and ocular melanoma, while raising funds to support patients affected with these illnesses when they need it most.

This year, the event will take place on September 25-26th, 2021. As always, participants will be able to choose a physical challenge of their choice to complete on the weekend of the event. Participants will form teams and, together with their friends and family, try to reach their personal fundraising goals.

To facilitate the whole thing, again this year we will be using a custom website that allows people to register, donate, solicit donations, track progress and promote the event all in one place. The website also includes many resources for participants to help them get ready, and a Q&A page for more information.

If you’re interested in joining us, please visit Move for Melanoma 2021 and register now.

 

Save Your Skin Foundation is the only organization in Canada that supports skin cancer patients financially when they need it most. All the money raised through your donations goes directly to patients in the form of cab fares, treatment costs, flights, accommodation and other necessary but costly expenses incurred while receiving treatment.

Whether you’re a survivor who wants to bring hope to newly diagnosed patients, the family member or friend of a patient who wants to send a powerful message of solidarity, or a patient who wants to help change the face of cancer for ever, we invite you to take a stand against melanoma and to move with us this September!

Hand in hand, we fight melanoma together!

          

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#InItTogether Campaign – Melanoma Is Personal

We’ve teamed up with Hayley Wickenheiser again this year to bring awareness to those coping with a melanoma diagnosis.  Summer is here, but if you’re not protecting yourself from the sun, the damage can be far-reaching. Melanoma is one of the top 10 cancers diagnosed in Canada and getting a diagnosis can be scary. Arming yourself with the right information you can literally change the course of your melanoma experience.

Ask about your mutation type. Do your research to find out your options. And know you are not alone in this.

Some Patients, Survivors, and Caregivers from the Save Your Skin Foundation family have come together share their story to inspire education and hope.

“I am newly diagnosed with metastatic malignant melanoma, and I plan to survive it.” – SHERI

“My melanoma came back, but I’m not letting fear in.” – BOB

“I was in end-of-life care when my doctor recommended I take part in a clinical trial.” – MIKE

“Learning that my melanoma was BRAF+ was a huge weight off my shoulders. That knowledge shaped my path through the disease.” – COLIN

“Melanoma research literally saved my life. Today I’m surrounded with the support of the melanoma community and I know they have my back.” – NATALIE

Check out this article in Elle magazine, dedicated to Canadians who have their own personal melanoma stories: 

ELLE Canada – Summer is Back ~ Do you know what you need to know about melanoma?

Check out these “Melanoma is Personal” videos on YouTube   And click here to see more clips on the SYSF youTube channel

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‘A Viking’s Challenge’ Completed

Hip hip hooray! Chris Isfeld and Shawn Bjornsson successfully completed their race: ‘A Viking’s Challenge’! The 30km race across frozen Lake Winnipeg took place on Saturday March 7, 2020.

Chris and Shawn’s adventure began when Chris was still in treatment for melanoma. He had started running again to overcome both the physical and emotional challenges he was experiencing and, one day, saw a photo of his childhood friend Shawn Bjornsson. Shawn had just finished a race in -40°C weather. His cheeks were red and his moustache covered with frost. Chris had a sudden inspiration! He decided to challenge Shawn to race across Lake Winnipeg, Canada’s sixth-largest lake. True to their viking roots, they did not back down from the challenge. They began planning, training and fundraising.

The race, which began in Grand Beach and ended in Gimli, took place during the Gimli Ice Festival and attracted a large crowd of people who welcomed the pair at the finish line with cheers of encouragement.

“The weather was ideal, but the running conditions weren’t,” said Chris, recounting how he felt during the race. “There were large drifts of snow across the trail which made the running very hard going. It felt like we were running on sand.”

“But as soon as I saw the crowd gathered at the finish line, I forgot how hard the race had been. I felt an amazing new surge of energy.”

Chris’ story is an exceptional example of human resilience and courage. And like in many stories of melanoma survivorship, Chris had an ally by his side to support him along the way. Shawn Bjornsson has been an outstanding supporter, literally running beside Chris each step of the way on this recent challenge.

“There were times during the run when I thought we wouldn’t make it. Shawn’s encouragement was crucial,” recounted Chris.

Having completed this heroic challenge, Chris Isfeld plans to take some time to rest and spend time with his family.

“To be honest, it hasn’t really sunk in yet that it’s over. I feel so exhilarated! This was the hardest run I’ve ever done, and to be hearing stories of how it’s inspiring others to give back too is just an amazing feeling,” he said.

As of this writing, Chris has raised almost $20,000! The funds raised will go to Save Your Skin Foundation and the patients we help. You can still donate to Chris’ fundraising page here.

        

 

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Cancelled: Join Team Save Your Skin at the BMO Vancouver International Marathon

CANCELLED

The 2020 BMO Vancouver Marathon has been cancelled due to increased COVID-19 concerns and the recent directive from the British Columbia Provincial Health Officer to ban all public gatherings that exceed 250 people.

For more information about the cancellation and how BMO Vancouver International Marathon plans to proceed, please visit: http://bmovanmarathon.ca/covid?fbclid=IwAR0rppmet7rhZK78NtSPVB-Bz4oikxm5dAnfYxla4jwNgYc2sBa4_X3m0Jk

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This May 3rd, Team Save Your Skin will be running in the BMO Vancouver International Marathon.

Join Rosemary Westie, champion of Save Your Skin Foundation, and other team members in proudly donning the Team Save Your Skin jersey. Our colours and logo have become a symbol of hope for those fighting melanoma. Let’s make our presence known!

Join the team! 

 

The BMO Marathon offers several race lengths:

  • Marathon (42.2 km)
  • Half Marathon (21.1 km)
  • 8 km
  • Relay (Runner A – 12 km, Runner B – 12 km, Runner C – 5 km, Runner D – 13 km)

 

Don’t want to run but still want to support Team Save Your Skin? Wear our jersey while volunteering at the Marathon!

Learn more about the BMO Vancouver International Marathon here.

Rosemary’s  Story

My sister Kath was diagnosed with late stage melanoma back in 2003. Needless to say, it was shattering.  We were petrified that we would lose her, but miracles do happen, and although it has been an uphill battle she is still with us today.  Kath has always been an amazing person, very thoughtful, giving and strong, both mentally and physically.  It is these qualities that have kept her going through her battle with melanoma, and these same qualities that she now calls upon to help anyone else struggling with this form of cancer through the organization we founded together, Save Your Skin Foundation.

Every time I challenge myself to run for melanoma patients, I am humbled by people dealing with real challenges, challenges they did not choose.  So friends, at this time I am reaching out to ask you to join me in running to help spread awareness of melanoma and non-melanoma skin cancers so that the ones you love never have to experience what Kath and our family went through.

For more information on joining Team Save Your Skin at the BMO Marathon, please contact Rosemary Westie at rwestie@shaw.ca.

Sign up now!

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A Viking’s Challenge – March 2020

Melanoma patient Chris Isfeld is preparing for a 30 km race in subzero temperatures across frozen Lake Winnipeg. He’ll be racing his childhood friend Shawn Bjornsson to raise funds for Save Your Skin Foundation.

The event, which he’s calling A Vikings Challenge, will take place on March 7, 2020.

His Story

Chris Isfeld’s story with cancer starts in 2017. After dealing with back pain for a number of months, he felt sudden excruciating pain in his side. An ultrasound revealed lesions on his liver and large masses on his adrenals. A biopsy of the lesions confirmed  evidence of Melanoma. His scans revealed that the disease was very advanced and the tumor burden was severe.

Very quickly, the pain intensified. Chris had to go to the ER only a month after the biopsy. It was there he realized that he was partially paralyzed from the waist down. The doctors thought that his journey was coming to an end.

Chris was given lifesaving immunotherapy treatment just in time. The treatment was challenging but it proved to be effective. The cancer stopped growing and the side effects became more manageable over the next few months. Soon, he was walking again. By December 2018, just one year after his melanoma diagnosis, he was lacing up his running shoes again. 

The results of his latest PET/CT scan, on November 2, 2019, show an almost complete metabolic response; he is well on the way to becoming NED (No Evidence of Disease).

The Challenge

Chris had been frequently running and practicing yoga to overcome the physical and emotional anguish he was feeling.

In a recent interview with Global News, he said:

“A friend of mine, Shawn Bjornsson from Winnipeg, posted a photo after he did a 5K run in -40, and for some reason, I just made a comment and said, ‘Hey, I’ll race you across the lake,’ just as a joke, But a week later, I thought about it, and thought, ‘You know what, this is an absolutely great idea.’

“It gives me something to focus on, and obviously with my diagnosis, I had gotten to know the people at Save Your Skin Foundation very well, and decided that I should do it as a fundraiser and raise money for them.”

The Race

True to their Viking roots, neither of them can back down from a challenge. On March 7, 2020, the first ever ‘Ice Run Across Lake Winnipeg’ will take place. The race will be about 30 km from Grand Beach, Manitoba to Gimli, Manitoba. They will be running to raise money for Save Your Skin Foundation.

Chris is already a quarter of the way to his goal of raising $30,000 for Save Your Skin Foundation. To learn more about Chris’s story or to donate to his campaign, visit his fundraising page here.

For sponsorship info, please contact: chris.i@designerclosetguys.com

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