Additional Support Groups

YOU ARE NOT ALONE IN DEALING WITH SKIN CANCER

Listed here are a few sources of information and support you might find useful. These groups are not connected to Save Your Skin Foundation. We are providing the links as useful sources of information but do not monitor content for accuracy and quality.

La Roche Posay Canada: Broad spectrum UVA-UVB protection with a range of textures suitable for every sensitive skin in the family. The No.1 recommended brand by dermatologists.

La Roche-Posay also provides educational resources for educating the public about sun safety and skin cancer prevention, as well as skin care information in the oncology space. View their recent video “The Importance of Skin Care in Oncology Patients” During this one hour webinar, they explore to what extent Canadians are living with or surviving from cancer with an increasing number of anti-cancer treatment-induced cutaneous side effects that can severely impact quality of life and ultimately treatment outcomes. Experts Dr. Maxwell Sauder and Dr. Joël Claveau provide practical best practice strategies to mitigate skin toxicities that are associated with oncology treatments, in an effort to improve patient quality of life, patient compliance as well as reduce treatment reduction, interruption and/or discontinuation. Additional collaborative resource available here: The Role of Skin Care in Oncology Patients

Canadian Skin Patient Alliance: Save Your Skin Foundation is an affiliate member of Canadian Skin Patient Alliance (CSPA). CSPA serves as an umbrella organization for Canadian not-for-profit patient groups and organizations that deal with skin conditions and diseases. By working together, we can strongly advocate for the needs of skin patients across the country and provide comprehensive education and support. Skin patients and their families benefit by becoming part of a bigger community and gaining access to information about treatment, care and research in skin disease.

Canadian Cancer Society: The major national organization in Canada for all types of cancer information and support. They also have provincial organizations.

Canadian Skin Cancer Foundation: We are a member of a network of organizations dedicated to improving accessibility to treatments for patients diagnosed with skin cancer.

StayWell Charity: StayWell is a charity that provides subsidized housing accommodations to patients who need to relocate to seek treatment in the city of Toronto. Our mission is to remove a major financial barrier to life-saving treatments by providing patients with comfortable, local, reduced-cost housing for patients and their families while they undergo hospital treatment. Visit StayWell.Charity

Quebec Cancer Foundation: For 40 years, the Quebec Cancer Foundation has raised the funds needed to provide everyday support to thousands of Quebecers dealing with cancer and to their loved ones. Through its regional centres in Montreal, Quebec City, Sherbrooke, Gatineau, Trois-Rivieres and Levis, it offers physical wellness programs and psychological support as well as the largest accommodation network in the province. Also, through its Programme it offers adapted help to young people aged 15 to 39 affected by cancer. Finally, the Foundation’s Info-Cancer Services offer listening, answers and solace in every part of the province. One in two Quebecers will face cancer. But both of them will need accompaniment. We are here to support them. Visit Quebec Cancer Foundation

Q-CROC: Quebec – Clinical Research Organization in Cancer (Q-CROC) coordinates a network of 18 of the most active hospitals in oncology clinical research, accounting for more than 95% of recruiting studies in the Quebec province. Q-CROC develops and accelerates the implementation of initiatives aimed at optimizing clinical research processes in its network, to stimulate the recruitment of participants in compliance with current standards.

Aim at Melanoma: AIM at Melanoma is globally engaged and locally invested in advancing the battle against melanoma through innovative research, legislative reform, education, and patient and caregiver support.

Cancer.Net: Cancer.Net is one of the most up-to-date and trusted resources for cancer information. Cancer.Net provides timely, oncologist-approved information to people living with cancer and those who care for and care about them. All the information and content on Cancer.Net was developed and approved by the cancer doctors who are members of ASCO, to help patients and families make informed healthcare decisions.

Melanoma International Foundation: Established in 2003, the Melanoma International Foundation (MIF) is a non-profit organization created to provide the scientifically sound guidance and support.

Melanoma Action Coalition: The Melanoma Action Coalition was established in 2014 by leaders of seven community-based foundations focused on increasing awareness about melanoma, providing education about sun safety, and raising money for melanoma research. Originally based in the mid-Atlantic region of the United States, they have since grown to include organizations and individuals from throughout the United States and Canada.

Melanoma Research Alliance: The mission of the Melanoma Research Alliance (MRA) is to end suffering and death due to melanoma by collaborating with all stakeholders to accelerate powerful research, advance cures for all patients, and prevent more melanomas.

Melanoma Research Foundation : Committed to the support of medical research in finding effective treatments and eventually a cure for melanoma, the MRF also educates patients, caregivers and physicians about the prevention, diagnosis and treatment of melanoma.

National Cancer Institute (Skin Cancer): The National Cancer Institute (NCI) in the U.S. is part of their National Institutes of Health (NIH). The NCI coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. The link above is to their homepage about skin cancers.

National Comprehensive Cancer Network: The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of 28 leading cancer centers devoted to patient care, research, and education. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers around the world.

Shade Foundation of America: The Shade Foundation of America describes itself as “The Children’s Skin Cancer Education & Prevention Foundation.” Based in Washington, DC, is the only national U.S. children’s foundation devoted to skin cancer education and prevention. The site includes activities and resources to educate kids about protecting their skin.

The Skin Cancer Foundation: Based in New York City, The Skin Cancer Foundation was founded in 1979 and works to educate the public and the medical profession about skin cancer, its prevention by means of sun protection, the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating skin cancer.

Additional Support Groups

YOU ARE NOT ALONE IN DEALING WITH SKIN CANCER

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