New NCCN Guidelines: Survivorship

New NCCN Guidelines: Survivorship

SYSF wishes to congratulate the National Comprehensive Cancer Network® (NCCN®) on their new release of incredibly valuable patient/caregiver resources!  

Click on the links below to take a look at the new, free informational resources on health and wellness for cancer survivors. These two new NCCN Guidelines for Patients® are focused on healthy living and managing late and long-term side effects, and include appropriate ongoing screening for recurrence.  

The books Survivorship Care for Healthy Living and Survivorship Care for Cancer-Related Late and Long-Term Effects provide jargon-free roadmaps for what comes next after initial cancer diagnosis and therapy.

Save Your Skin Foundation is pleased to have provided endorsement for the books, as well as several quotes from skin cancer patients, survivors, and caregivers in our own community!  Kathy, Mike, Chris, Yvonne – and many more – have offered their helpful words of wisdom to all who read these.  And they join the ranks of SURVIVOR TV show winner and cancer survivor, Ethan Zohn, who can attest that “Getting a cancer diagnosis is scary. Surviving cancer can be even more scary.”  Click here to read the full press release

Though these guidelines are developed with best practices in use in the United States, the resources do apply to patients and clinicians in Canada (where treatment options and accessibility apply), as confirmed with members of the Save Your Skin Foundation Medical Advisory Board.  Canadian doctors do refer to the NCCN clinical guidelines, and they do support the distribution of NCCN patient guidelines to Canadian patients.

There are guidelines created for many cancers; we have listed below the links to each most relevant to the topic of skin cancer or ocular melanoma, as well as supportive topics such as immunotherapy or treatment side effects, and mental wellness issues and survivorship. NCCN guidelines are easy to read, well illustrated, and a valuable resource for patients, available as online e-booklets, download-able PDF files, or on the “NCCN Guides for Cancer” app for iPhone or Android devices and tablets.

To view the guidelines, please click the following links:

NCCN Guidelines for Patients®: Melanoma

NCCN Guidelines for Patients®: Squamous Cell Skin Cancer

NCCN Guidelines for Patients®: Immunotherapy Side Effects series:

Immunotherapy Side Effects: CAR T-Cell Therapy and  Immunotherapy Side Effects: Immune Checkpoint Inhibitors

NCCN Guidelines for Patients®: Survivorship Care for Healthy Living and Survivorship Care for Cancer-Related Late and Long-Term Effects 

NCCN Guidelines for Patients®: Distress

NCCN Guidelines for Patients®: Adolescents and Young Adults with Cancer

Coming Soon – Guidelines for Patients on Basal Cell Carcinoma, and Uveal/Ocular Melanoma!  If you wish to read the Clinical Guidelines (for Health Care Providers), please see here:  NCCN Clinical Practice Guidelines®: Uveal Melanoma

The Patient books are available for free to view and print at NCCN.org/patients or via the NCCN Patient Guides for Cancer App: Virtual Library of NCCN Guidelines® App – Available for iPhone/iPad and Android Smartphone/Tablet

The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of 28 leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers around the world.

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