Click below to read the public document written by the participants of the 2017 BioCanRx -Cancer Stakeholder Alliance Learning Institute that was held at the 2017 Summit for Cancer Immunotherapy (Summit4CI) from June 25 to June 28, in Gatineau, Quebec. Louise Binder was one of these participants.
This report serves to share the key research take-away messages presented at the Summit 4CI as well as the group reflections of The Learning Institute with the oncology patient and researcher community, BioCanRx, the Cancer Stakeholder Alliance, and the general public.
October 10, 2017: Click here to read the report from the Save Your Skin Foundation survey which discusses various aspects of the impact a melanoma diagnosis has on the mental health of patients and their caregivers.
Our health care system is complex with many key decision makers at either federal, national or provincial levels that are responsible for the health care services Canadians receive. Canada, like many countries, is facing escalating healthcare costs as payers struggle to reconcile drug budgets with patient access to promising new health technologies. Health Canada holds different responsibilities influencing the landscape of our health care system, including drug safety, quality and effectiveness, and an important role with respect to drug pricing.
The Patented Medicine Prices Review Board (PMPRB) undertook major consultations regarding possible reform of its Compendium of Policies, Guidelines and Procedures and during this 1st phase of the consultation initiative, asked for input on how to rethink the Guidelines in order to improve performance in ensuring that pharmaceutical patent holders do not charge excessive prices. We, as patient organizations, recognize the regulations overseeing drug pricing need to be re-evaluated, especially given the changes in our ecosystems since the inception of these regulations.
We are grateful to all those involved in seeking the input of groups like ours and other stakeholders on protecting Canadians from excessive drug prices. Save Your Skin Foundation participated with 16 other concerned patient groups. Click here to read and download: Recommendations on Proposed Amendments to the Patented Medicines Regulations, June 28, 2017
Save Your Skin Foundation has developed an established government relations approach that includes open communication and consultation between policy makers and leaders within the Foundation. We contribute to policy discussions and work towards consistent and effective implementation of procedures and protocols that put the patient ﬁrst. Click here to read about our January – June 2017 schedule of meetings.
In November 2016, the first annual Drug Pricing Policy Summit was held in Toronto, Ontario. Click here to read the Event Report: Drug Pricing Policy in Canada: Mobilizing Patients to Action
In November 2017 was the second DPPS – varied patient groups joined the Canadian Cancer Survivor Network, Schizophrenia Society of Ontario, and Save Your Skin Foundation to discuss: Drug Pricing Policy in Canada: Measuring Progress and Making Our Mark – please click here for all updated reports, recordings, and background information.
Advocates across the world are working with those who make decisions about healthcare to ensure that the patients they serve have access to appropriate care. Kathy Barnard of Save Your Skin in Canada knows first-hand how access can transform a patient’s chances. With Canada’s fragmented healthcare system, Kathy has been spearheading submissions to the assessment authorities and believes the next step is to work internationally to share learnings, approaches and evidence globally. Click here to read and download the booklet and resources: A³ ~ ADVOCACY: ACCESS IN ACTION
In 2015, Save Your Skin Foundation invited a group of leaders in patient advocacy to discuss the need for a network focused on Immuno-oncologies and dedicated to ensuring access to these important therapies for cancer patients in Canada. Since then, CONECTed, a collective of patient advocates, has been dedicated to raising awareness of the needs of cancer patients through a unified and cohesive patient voice and has been involved in addressing issues within the system, at the government level and in HTA both related to immuno-oncology and other therapies. Click here to read more about the work being done by CONECTed
Making awareness and education available is crucial. Since 2006, the Foundation has worked to raise awareness of melanoma and non-melanoma skin cancers focusing on education, prevention and the need for improved patient care.