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melanoma story

‘A Viking’s Challenge’ Completed

Hip hip hooray! Chris Isfeld and Shawn Bjornsson successfully completed their race: ‘A Viking’s Challenge’! The 30km race across frozen Lake Winnipeg took place on Saturday March 7, 2020.

Chris and Shawn’s adventure began when Chris was still in treatment for melanoma. He had started running again to overcome both the physical and emotional challenges he was experiencing and, one day, saw a photo of his childhood friend Shawn Bjornsson. Shawn had just finished a race in -40°C weather. His cheeks were red and his moustache covered with frost. Chris had a sudden inspiration! He decided to challenge Shawn to race across Lake Winnipeg, Canada’s sixth-largest lake. True to their viking roots, they did not back down from the challenge. They began planning, training and fundraising.

The race, which began in Grand Beach and ended in Gimli, took place during the Gimli Ice Festival and attracted a large crowd of people who welcomed the pair at the finish line with cheers of encouragement.

“The weather was ideal, but the running conditions weren’t,” said Chris, recounting how he felt during the race. “There were large drifts of snow across the trail which made the running very hard going. It felt like we were running on sand.”

“But as soon as I saw the crowd gathered at the finish line, I forgot how hard the race had been. I felt an amazing new surge of energy.”

Chris’ story is an exceptional example of human resilience and courage. And like in many stories of melanoma survivorship, Chris had an ally by his side to support him along the way. Shawn Bjornsson has been an outstanding supporter, literally running beside Chris each step of the way on this recent challenge.

“There were times during the run when I thought we wouldn’t make it. Shawn’s encouragement was crucial,” recounted Chris.

Having completed this heroic challenge, Chris Isfeld plans to take some time to rest and spend time with his family.

“To be honest, it hasn’t really sunk in yet that it’s over. I feel so exhilarated! This was the hardest run I’ve ever done, and to be hearing stories of how it’s inspiring others to give back too is just an amazing feeling,” he said.

As of this writing, Chris has raised almost $20,000! The funds raised will go to Save Your Skin Foundation and the patients we help. You can still donate to Chris’ fundraising page here.

        

 

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A Viking’s Challenge – March 2020

Melanoma patient Chris Isfeld is preparing for a 30 km race in subzero temperatures across frozen Lake Winnipeg. He’ll be racing his childhood friend Shawn Bjornsson to raise funds for Save Your Skin Foundation.

The event, which he’s calling A Vikings Challenge, will take place on March 7, 2020.

His Story

Chris Isfeld’s story with cancer starts in 2017. After dealing with back pain for a number of months, he felt sudden excruciating pain in his side. An ultrasound revealed lesions on his liver and large masses on his adrenals. A biopsy of the lesions confirmed  evidence of Melanoma. His scans revealed that the disease was very advanced and the tumor burden was severe.

Very quickly, the pain intensified. Chris had to go to the ER only a month after the biopsy. It was there he realized that he was partially paralyzed from the waist down. The doctors thought that his journey was coming to an end.

Chris was given lifesaving immunotherapy treatment just in time. The treatment was challenging but it proved to be effective. The cancer stopped growing and the side effects became more manageable over the next few months. Soon, he was walking again. By December 2018, just one year after his melanoma diagnosis, he was lacing up his running shoes again. 

The results of his latest PET/CT scan, on November 2, 2019, show an almost complete metabolic response; he is well on the way to becoming NED (No Evidence of Disease).

The Challenge

Chris had been frequently running and practicing yoga to overcome the physical and emotional anguish he was feeling.

In a recent interview with Global News, he said:

“A friend of mine, Shawn Bjornsson from Winnipeg, posted a photo after he did a 5K run in -40, and for some reason, I just made a comment and said, ‘Hey, I’ll race you across the lake,’ just as a joke, But a week later, I thought about it, and thought, ‘You know what, this is an absolutely great idea.’

“It gives me something to focus on, and obviously with my diagnosis, I had gotten to know the people at Save Your Skin Foundation very well, and decided that I should do it as a fundraiser and raise money for them.”

The Race

True to their Viking roots, neither of them can back down from a challenge. On March 7, 2020, the first ever ‘Ice Run Across Lake Winnipeg’ will take place. The race will be about 30 km from Grand Beach, Manitoba to Gimli, Manitoba. They will be running to raise money for Save Your Skin Foundation.

Chris is already a quarter of the way to his goal of raising $30,000 for Save Your Skin Foundation. To learn more about Chris’s story or to donate to his campaign, visit his fundraising page here.

For sponsorship info, please contact: chris.i@designerclosetguys.com

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Melanoma Awareness Month – May 2019

May is Melanoma Awareness Month

May is Melanoma Awareness Month and it’s the perfect time of year to review a few easy steps we can all take to Be Sun Safe!

Spread Awareness

Join us in spreading the word about Melanoma Month by using one of our facebook banners as your cover photo! They are available for download HERE:

Sun Safety

Help us share the message about Sun Safety! Download our Sun Safety infographics by clicking on the images below and share with your friends and family!

      

Examine Your Skin

Learn how to perform a monthly skin self-exam!  When caught early, skin cancer is very treatable.

Patient Support

For those living with melanoma, support can be vital to the healing process. Save Your Skin Foundation provides a collection of resources as well as several ways for patients to connect with others or with private support. If you know someone touched by melanoma, please help them to connect with us.

We provide one-on-one support through Founder Kathy Barnard. We also provide support from other patients and survivors through our initiative “I’m Living Proof”

Click HERE for a summary of the ways you can connect with other patients, survivors, and caregivers touched by melanoma and non-melanoma skin cancers, and ocular melanoma.

Press Release

If you’re interested in what Save Your Skin is working on for Melanoma Awareness Month, check out our official press release, which includes vital information about melanoma rates in Canada, prevention and detection, and how to support those battling skin cancer.

Public Service Announcement

Click here to watch our new video cut about sun safety and skin cancer awareness:

 

 

Stay tuned for more updates throughout May – Melanoma Awareness Month!

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Introducing: Ocumel Canada

For the past year, Save Your Skin Foundation has been working with ocular melanoma (OM) survivor and advocate Nigel Deacon, to improve OM patient care across the country. Together we created a survey and resulting report in order to gain insight into the Canadian OM patient journey, and we have connected with innovative OM treatment researchers as well as explored testing options in Canada for ocular melanoma, also known as uveal melanoma. Additionally, we have partnered with OM patient support groups around the world, such as Cure OM (an initiative of the Melanoma Research Foundation, United States), and Ocumel Ireland and Ocumel UK.

We are inspired by the work being done by these groups, and by the feedback we receive from patients who need better support in their diagnoses of primary and/or metastatic ocular melanoma, to work toward better and more standardized care in all provinces in Canada. We have identified gaps in OM patient care which can vary from centre to centre, and we recognize the need to advocate for patients to receive treatment for their disease, especially when it is metastatic.

In order to continue this work and raise awareness for this rare disease and the patients who need support to handle it, we have created a dedicated initiative called Ocumel Canada, which will serve as our platform for increasing education and community around the topic.

Ocumel Canada strives to do the following:

  • Advocate for early detection of ocular melanoma
  • Enable access to early treatment of primary ocular melanoma
  • Work towards a consistent approach to treatment of metastatic ocular melanoma
  • Support patients who have been diagnosed with primary or metastatic ocular melanoma
  • Build a network of support for patients and caregivers

 

Ocumel Canada will work with health care providers and HTA decision-makers across Canada to improve ocular melanoma patient outcomes. We applaud the work being done at the two busiest centres for referrals, and we wish to help extend treatment options to patients in remote areas and to provinces who do not currently participate in the same practices available to OM patients in areas such as Toronto, Ontario. Advocacy for increased patient access to clinical trials, even if in other countries, is also an aim for Ocumel Canada.

Today we begin with a new hope for Canadians diagnosed with ocular melanoma.

Click here to read the press release: Launch of OCUMEL CANADA Offers New Hope for Canadians Diagnosed with Rare Ocular Melanoma

Stay tuned for updates on our progress!  And tune in Friday February 15, 2019 to our webinar Ocular Melanoma: Innovative Treatments and Beyond, with Dr. Butler of Princess Margaret Cancer Centre, and Dr. Hamid from The Angeles Clinic and Research Institute, in Los Angeles, California, U.S. This webinar will provide an update on the landscape of metastatic ocular melanoma treatment in Canada and the United States. Dr. Hamid and Dr. Butler will share their knowledge of current practices and care pathways, identifying the most pressing needs for patients.  They will also discuss innovative treatment options such as IMCgp100, as well as clinical trials available to Canadian patients with ocular or uveal melanoma. Nigel Deacon will share his experience with this rare cancer; Kathy Barnard will facilitate the discussion.

For more information about ocular melanoma and the Ocumel Canada initiative, please feel free to explore the information we have put together for our website at www.ocumelcanada.ca , email ocumelcanada@saveyourskin.ca, or call us at 1-800-460-5832. 

We have created the following pages to provide up-to-date links and resources:

Ocumel Canada – About Ocular Melanoma

Ocumel Canada – Helpful Links

Ocumel Canada – Resources and Support

Ocumel Canada – 2018/2019 Strategic Plan

https://www.instagram.com/p/BsqaD2xgyf6/

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I’m Living Proof Connects Melanoma Patients and Survivors

When Save Your Skin Founder Kathy Barnard was diagnosed with Metastatic Malignant Melanoma in 2003, the first thing she did was look to the internet for anything that would inspire optimism for her prognosis; hopeful news, survivors, or treatment options. She didn’t find much.

From this experience was created the “I’m Living Proof” initiative and website, intended to provide a wealth of information, resources, and support to those touched by cancer, while also connecting patients and their families to a community of survivors who have shared their stories. This initiative was borne from Kathy’s desire to ensure that those diagnosed with melanoma know that surviving melanoma is possible –“I’m Living Proof”.

Visitors to the site are encouraged to read participating patients’ stories, and they are given the option to connect with these patients via a secure form privately shared between the Save Your Skin Foundation team in collaboration with the person wishing to connect with other patients or survivors.

An interactive map serves as a method for patients and survivors to reach people across Canada and around the world.

 

On the map we use stars to represent survivors; we do this to inspire everyone already diagnosed, and those who will be diagnosed, to reach for the stars because there is hope for survival. Those of us surviving melanoma today are living proof of that. We also hold stars close to our heart as we remember those we’ve loved and lost to melanoma. These individuals are our stars in the sky, which is why Save Your Skin donates an actual star to the family of every melanoma patient we lose with a connection to the foundation.

To give you a bigger and better interactive map for which to connect with other patients, we have moved the former I’m Living Proof website to be housed right here under our very own SYSF site. Click HERE to see the map!

 

Please feel free to check out our map and click on the stars in locations across Canada to read the stories and see videos of fellow melanoma survivors.  If you feel you would like to speak with one of these folks, you can fill out a quick form and we will send your request to the person you wish to meet via email.

If you would like to share your story and join our support community via a star on the map or otherwise, you can click here to fill out a quick form to let us know you’d like to be in touch.

Tell us a little about yourself!  And what you think about this program.  We are here to help: Hand in hand we fight melanoma together. 

Welcome!

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Natalie’s Story

Meaford, ON

In the spring of 2014, at 37 years old, I was diagnosed with Stage IIIB nodular melanoma. Over the course of six to eight months, a lifelong mole on my hip had grown, changed in colour, and become itchy. Being a busy working mother of eleven year-old twins, I neglected to have this mole looked at until my daughter insisted I show our doctor while in her office for a sore throat.

Two days later an excisional biopsy was performed and the pathology revealed a melanoma with Breslow depth of 12.5 mm, Clark level 5, and a relatively high rate of three mitoses per millimeter squared. The peripheral margins were quite close at 0.2 mm, however the deep margin was 6 mm. One week after finding melanoma in the mole, I had a sentinal node biopsy, revealing a further diagnosis of metastases. I still struggle to understand these terms, but I do know they have altered my life forever.

Within a month I had a right hip wide local excision to 2 cm margins, and a superficial and deep right groin lymphadenectomy, going home to be on strict bedrest for eight weeks. I had four of thirteen lymph nodes positive, therefore I received further treatment post-surgery, in the form of immunotherapy. I participated in a clinical trial at Sunnybrook in Toronto, receiving eight doses of ipilimumab over sixty-eight weeks; four treatments three weeks apart, and then four more treatments, each being three months apart, with the last one in September 2015.

I still have CT scans every six months to maintain surveillance on my melanoma. Although I am considered at high risk for recurrence, to date I am still clear and I am grateful to report that my life has resumed with hope and ambition. I am happy to share my story as it may help someone else feel less desperation in such a scary situation. Living with melanoma is not easy, but we are not alone.

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