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melanoma patient survey

Paxlovid® Submission Survey Results Data

Save Your Skin Foundation is proud to present the findings of our survey, designed to capture the experiences of individuals with COVID-19 in using Paxlovid® as a treatment. This survey welcomed participants from diverse backgrounds, including those who have battled COVID-19, regardless of whether they used Paxlovid®, as well as individuals keen to share their views on accessible treatments for the virus.

The invaluable insights gathered through this survey played a pivotal role in shaping our submissions to the Canadian Agency for Drugs and Technologies in Health (CADTH) and Institut national d’excellence en santé et en services sociaux (INESSS) for access to Paxlovid®.

Save Your Skin Foundation developed this survey to gather patient experiences regarding the use of Paxlovid® as a treatment for COVID-19. The survey was open to everyone who has either experienced COVID-19, regardless of whether they received Paxlovid®, and others who wanted to contribute their opinion on the importance of accessible treatments for COVID-19. This information was used for Save Your Skin Foundation to prepare submissions for access to Paxlovid® to CADTH and INESSS. This survey was endorsed and distributed by a variety of partner patient groups, to whom we are grateful for their support; a complete list of these organizations is available on the final page of this presentation.

Two versions of the survey were open from September 3-September 20, 2023, one in English and one in French. Data from both of the surveys was combined for the aforementioned CADTH and INESSS submissions. For this presentation, visual representations of the English results will be accompanied by a description of the French data for each question.

Lastly, we would like to express our gratitude to the partner patient groups who endorsed and distributed this survey, and we are thankful for their unwavering support. In these results, we will showcase the visual representations of the English survey results, complemented by detailed descriptions of the corresponding data from the French survey. Your participation and contribution have been instrumental in advancing our mission toward accessible and effective COVID-19 treatments.

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Opdualag™ Submission Survey Results Data

In the realm of medical breakthroughs, understanding patient experiences is paramount. In this spirit, the Save Your Skin Foundation embarked on a pioneering initiative, delving into the world of melanoma treatment. The survey, titled “The Patient Experience of Nivolumab + Relatlimab (Opdualag™),” crafted meticulously by the foundation, was designed to fathom the depths of Opdualag™ as a treatment for adult cutaneous melanoma in stage III unresectable or stage IV melanoma.

Save Your Skin Foundation developed this survey to gather patient experiences regarding the use of Opdualag™ as a treatment for adult cutaneous melanoma in stage III unresectable or stage IV melanoma. The survey was open to everyone who has received a treatment for melanoma, regardless of stage and experience with Opdualag™; however, data logic has been applied to ensure that only applicable participants answer the questions about Opdualag™. This information was used for Save Your Skin Foundation to prepare submissions for access to Opdualag™ to the Canadian Agency for Drugs and Technologies in Health (CADTH) and Institut national d’excellence en santé et en services sociaux (INESSS).

Two versions of the survey were open from July 3-July 15, 2023, one in English and one in French. Data from both of the surveys was combined for the aforementioned CADTH and INESSS submissions. For this presentation, visual representations of the English results will be accompanied by description of the French data for each question.

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Melanoma Patient Survey for World Mental Health Day

A cancer diagnosis of any kind takes a toll on the mental health of those who receive it; feelings of anxiety, fear, and depression are common while adjusting to the uncertainty of a new life with cancer. World Mental Health day is October 10, and this year Save Your Skin Foundation is hoping to shed some light on the affects of a melanoma diagnosis on the mental health of patients and survivors.

By taking our survey anonymously, as either a patient or survivor, you will be providing us with insight regarding the need for emotional support among those diagnosed with melanoma, how these needs change in the transition period from patient to survivor, and how to provide the best support possible for anyone in this process.

We appreciate your taking this survey before September 25, and hope that you will share it with anyone you may know who has experienced a melanoma diagnosis. With your help, we hope to improve the ways we address mental health support for melanoma patients.  Stay tuned for the report we will compile from the survey! The survey is now closed, thank you for your feedback. 

Updated October 10, 2017: Please click here to read the report ~ SYSF Survey: Melanoma Patients and Mental Health, 2017

 

More information about World Mental Health Day can be found here.

For any questions or additional information, please feel free to contact us.

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